Before my accident I went two times a day. after my accident I seemed to go 
without knowing it. I was on lotsa morphine and suppose to be worried about 
getting constipated. After consulting with dieticians ands finally a doctor 
who's specialty was rehab, I got on a bowel program that works for me. This 
doesn't mean its universal and can work for anyone. I forget to eat somedays. 
I've never had any burning or tingling pain. The pain I have is more like being 
crushed. It begins at neck and shoulders and as the day goes on it moves over 
my back to my hips and knees. I take 2 hydrocodone to get in my chair and then 
as needed. I call it my cape of pain. I figure the pain is different for us 
too. Other than headaches and AD I never had much pain untill the early 90's. 
At first it was just unrelenting sweat untill it turned to AD. Just depressing 
thinking about it. I'm just saying we are all very different and it is a matter 
of what works for you. 

john
p.s. sure wish I could go every day. I find the commode relaxing. Getting to it 
and back sucks.



----- Original Message ----
From: Corie Jones <[EMAIL PROTECTED]>
To: [email protected]
Sent: Monday, October 8, 2007 2:01:41 AM
Subject: Re: [QUAD-L] advice on bowel program


It sounds like most of the people who have responded go only 2-3 times a week.  
I'm wondering if those of you who do not go every day or every other day, have 
no sensation?  I go every day because I have sensation and my gut/bowels feel 
full and bloated if I don't go every day.  I have chronic nerve pain (the 
horrible burning and needles from my injury level down) and with the burning 
pain and feeling full if I don't go every day or even if I'm constipated and 
don't go enough, then I'm just miserable.  Before my SCI (14 years ago), I went 
once a day, sometimes twice a day so I think it's just normal for my body to go 
every day.  Fortunately, I use a magic bullet suppository and usually eliminate 
over the toilet on my shower/commode chair after 15-30 minutes.  When I get 
back into bed, just to make sure I have got it all out, I will have a digital 
and get any remaining stool out.  Most of the time I do not have anything left. 
 I take 4 fiber capsules and
 two stool softener/laxatives every day and it keeps me pretty regular.  Plus, 
I usually try to eat veggies and fruit regularly.  I have been lucky that I 
have only had a handful of accidents in the 14 years I've been injured.

Corie, C5, incomplete
Redding, CA
----- Original Message ----- 
From: Elizabeth Treston 
To: [email protected] 
Sent: Sunday, October 07, 2007 11:17 AM
Subject: [QUAD-L] advice on bowel program


What is your routine?  Do you take meds (i.e. senna tablets, colace, what kind 
of suppository; when do you take them?  How much fiber?  
Do you take narcotics? 
When do you go (every day, every other day etc.
 
As a newly injured person it takes awhile to figure out what is best for you.
 
Many use senna tabs @ 7-8 hours before their schedule..  Some add colace to 
keep stool soft.  Some go every MWF or every other day so they aren't attached 
to the toilet.
 
Is your stool hard?  Is it enough for what you are consuming?




From: Nichole Rohling [mailto:[EMAIL PROTECTED] 
Sent: Sunday, October 07, 2007 1:57 PM
To: [EMAIL PROTECTED]; Quadlist
Subject: Re: [QUAD-L] Please, can you give advice on bowel program


I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR AND NO 
RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING AND IF NOT 
IT GETS RID OF THE SUPPOSITORY
 
NICKI
----- Original Message ----- 
From: [EMAIL PROTECTED] 
To: [email protected] 
Sent: Saturday, October 06, 2007 11:19 PM
Subject: [QUAD-L] Please, can you give advice on bowel program


I am so sick and tired of this dominating my life.  It is after  12 midnight 
and I am considering sleeping on the potty chair.  

At 8 I inserted a suppository.  An hour and and half later I decided to call it 
quits, nothin happening.

It's 9:30 and am making my way to bed.  THEN I needed to get back on and did 
not make it.  What a mess. When will this get better?  I am so tired of this 
that I am seriously considering limiting my food intake.  Starting tomorrow.

Taking a shower and dressing took me 2 hours and I have spent over 3 hours 
doing my bowel program.  It has been a year since my accident.  Shouldn't I 
have this figured out by now?

I am so frustrated and angry. Sick and tired of crying to.

 
Thanks

Shelly
1 year post
C6-C7 incomplete



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