If anyone has problems with vocal chord spasms making it difficult to
swallow, my allergy doctor has given me a sheet of relaxation exercises
for the vocal chords. I can upload it to the group. Let me know.
Carolyn
The curse of reflux. Our bodies are under such high stress and so are we
emotionally.
Carolyn
My husband has many allergies and I have an SCI. Years ago we discovered
Kirk's Castile Soap and neither of us has had any problems with it. You
can find it online for about $1 a bar if you do a careful search.
Carolyn
Has anybody on the loop had shoulder replacement surgery?
Carolyn
Hubby and I use coal tar shampoo. I've got Sebhorreic Dermatitis (long
predating the spinal cord injury) and so does he.
Carolyn
My husband and I like Netflix online. It's like nine bucks a month. It's
preinstalled on our TV also.
Carolyn
Does anyone else suffer from spasms of the vocal chords, which causes
problems with swallowing and problems with breathing? Have you found
anything that helps? The liquids I drink need to be room temperature,
which I hate.
Carolyn
C3-7 Incomplete
If you have a Tuesday Morning store near you, they have great prices on
sheets.
Carolyn
Gravity hates me.
Carolyn
Hi All,
I learned some information I didn't know about breathing problems that I
am sharing, in case it might do anyone on the loop any good.
I went back to my allergy and asthma doctor last week after a long
absence on my part. What I learned that I had never been clear on, is
how your
There have been so many reports of fake deaths of famous people in the
last few years, it's just insane. I read that one of the original
members of the rock group Journey had died. He's fine and still
performing on his own.
Carolyn
I'd put Colloidal Silver on it because CS kills all bacteria. We use the
Sovereign Silver brand as it has had the best results on wounds for my
husband and myself.
Carolyn
A lot of the folks in the Arkansas Spinal Cord Commission's support
group use the same chair as Debra and really like it. Most of these I'm
thinking of are on workman's compensation and that's how they get their
chairs paid for.
Carolyn
http://www.rehab-store.com/p-straight-wand-mouth-stick.html?utm_source=bing_medium=cpc_campaign=ADL%20Shopping_term=1101131639486_content=Mouth%20Sticks%20%26%20Head%20Pointers
Hi All,
I have the problem I don't get thirsty, and with the brain injury, I'm
not always good about remembering to drink water.
I knew dehydration could cause low blood pressure, but never knew it
could cause high blood pressure. So now I know why my blood pressure has
been so high (not AD
Hi All,
I have the problem I don't get thirsty, and with the brain injury, I'm
not always good about remembering to drink water.
I knew dehydration could cause low blood pressure, but never knew it
could cause high blood pressure. So now I know why my blood pressure has
been so high (not AD
Have someone rub it with Colloidal Silver.
Carolyn
There are several Mouthsticks for sale on eBay of a different brand.
There is also a website which seems to be down while I'm writing this
message called www.wisdomking.com which sells Mouthsticks and accessories.
Hope this helps.
Carolyn
I've got an example. I have a problem with dry eyes. I went to my eye
doctor yesterday. There is a new product on the market that you put in
your microwave, heat up, and put it over your eyes for about five
minutes. He was telling me to lean my head back. I couldn't make him
understand I can't
I thought you might find this interesting:
http://www.thv11.com/news/local/ark-teacher-shows-remarkable-improvement-with-new-multiple-sclerosis-treatment/446419063
Carolyn
For you folks with MS:
http://www.thv11.com/news/local/ark-teacher-shows-remarkable-improvement-with-new-multiple-sclerosis-treatment/446419063
Carolyn
sorry
about the underlining
For you folks with MS:
http://www.thv11.com/news/local/ark-teacher-shows-remarkable-improvement-with-new-multiple-sclerosis-treatment/446419063
Carolyn
sorry
about the underlining
For you folks with MS:
http://www.thv11.com/news/local/ark-teacher-shows-remarkable-improvement-with-new-multiple-sclerosis-treatment/446419063
Carolyn
sorry
about the underlining
Drink colloidal silver for bladder infections (for any infection).
Nothing is immune to it, even MRSA bacteria.
Carolyn
kidney stone?
Carolyn
Try putting a towel flat under it between it and the mattress. That will
put some friction against the bottom and it will have more resistance
when it tries to move.
Carolyn
Debra,
Contact Sennheiser. They may be able to help you. They are a
reputable company with a long history making headsets and
headphones. Hope this helps.
https://en-us.sennheiser.com/service-support-contact-center
C
We had Roku unit for music on the music server years ago and it didn't
work very well. I have no personal experience with their TV device though.
Carolyn
Hi All,
A similar gadget is available on eBay much cheaper (no offense). See the
link I sent.
Carolyn
I did a quick search on the Internet and came up with this:
http://www.ebay.com/itm/360-Rotating-Flexible-Universal-Lazy-Phone-Stand-Clamp-Car-Bed-Clip-Desk-Holder-/142018244042?var==item2110f26dca:m:mf5RL4UQMYJIxgYPOKcRbng
Carolyn
Hi All,
I have recently developed a new symptom from the SCI/TBI: hands
releasing when you don't want them to (ie holding something in your hand).
It's been 22 years since my accident. I'm guessing it's age-related.
Does anybody else have this problem and is there a way to make it stop?
Good Morning All,
Over the years I have developed increasing difficulty swallowing. Some
of it is because I have had three spinal cord operations in my neck. I
also have a Traumatic Brain Injury.
How does a person get this tested, diagnosed, and get a treatment plan
worked up? I'm getting
It sounds like a very dangerous situation to me, one requiring a
doctor's advice ASAP so as not to lose the toes to gangrene.
Carolyn
Hi All,
I'm on 100 mg of Lyrica twice a day. As you know, the generic won't come
out in this country until 2018. My insurance has raised the co-pay on
this prescription to $350 a month which I can't afford. I really need
the stuff to be able to function. I can't take Gabapentin because it
Hi All,
I've developed a new symptom after all these years. I've become
hypersensitive to things that shouldn't hurt as much as they do, such as
pulling a tangle with a brush out of my hair.
Any advice on this?
Carolyn
C3-7 Incomplete
I take a lot of Melatonin on top of all of the medication and still
don't sleep well.
C
I can't drink Ensure. I think it's the canola oil in it, but it gives me
diarrhea. I have found that vitamins and minerals do help, especially
the combination of D3 and K for energy.
Carolyn
Have you folks seen this?
https://medicalxpress.com/news/2017-03-multiple-sclerosis-drug-years-halt.html
Carolyn
I couldn't find a DVD of Waterdance and it was such a good movie I
bought it on VHS just to have a copy.
Breaking the Waves is another movie. I have it, but haven't watched it.
It's a foreign film.
Carolyn
With the changes to the metabolism SCI causes, I'd be afraid to try
anything like that. There are better ways to gain weight.
C
I have no personal experience with it, but I would have concerns about
being injected with the same bacteria that causes botulism, especially
with a spinal cord injury.
Carolyn C3-7 Incomplete
Anything above 50 with low humidity.
Arkansas is even more bipolar than Oklahoma. We've had days that started
around 80 and ended around 20.
Keep things about 73 all year long.
Carolyn
My husband of 33 years (in March) and a houseful of special needs cats.
We couldn't have children so we started adopting special needs cats. We
did get carried away over the years, but we younger and in better health.
In a more technical sense we keep pushin' on because we haven't died yet.:-)
My dentist recommended I buy one because I need shoulder replacement
surgery and am having trouble brushing my teeth. I discovered I can't
use it because it causes the titanium fusions in my neck to vibrate. My
husband really likes it, though.
Carolyn
I think we as individuals no longer have much control over how we live
our lives. For example, prescriptions that were covered last year by my
health insurance are no longer covered. I see no opportunity for any
quality of life and little freedom of choice. Call me jaded if you will
but it's
Yes, if you're filthy rich. For the rest of us, nevermind. It might as
well not even be invented. People can't even get powered wheelchairs
they need now.
Carolyn
I'd pay off the house, other debts, and if it were possible for hubby to
"buy" the extra years he needs to retire at full benefits, we might do
that. I know he'd like a larger house so we'd just have to juggle the
options.
Carolyn
I got a Dragonfly Red DAC. It's a USB stick that plugs into your
computer. You then plug your sound cable into it, and it makes the music
playing on your computer sound incredibly better.
Carolyn
A good pain management specialist might be able to help with the pain.
I've had one implant done, years ago. I broke another tooth last year
right behind the implant, had to have it removed under general
anesthesia. Implants are just too expensive at about $5K each, just not
worth it. I
Haven't had the MRI done yet. I'm completely fused at the other end, but
I may be facing L-level surgery. What should I expect in terms of loss
of movement etc if I have to have it done? I've already lost the finer
coordination of choosing where I put my feet. We also don't know if the
problem
I haven't been able to find anything about the current version of the
bill doing so. There have been so many revamps and revisions of the bill
and it's still constantly being changed and argued over.
Carolyn
Yes, as far as I know.
The other amazing breakthrough has been in Japan. The Japanese doctors
have fitted an SCI survivor with a metal cyborg-like frame that allows
the person to walk for short periods of time. The breakthrough they
didn't count on is that the body and the brain are
My hands go numb when I'm asleep in this weather. I have to sleep in
wrist splints.
Carolyn
If you wear hearing aids, you will have to get an iPhone. Otherwise the
device to feed the TV sound and stereo sound through hearing aids is an
extra $300. Otherwise, don't get a Samsung. Motorola Droids are supposed
to have the longest battery life of any of the Smartphones (2 days).
Hope
I bought a Samsung TV in October. Here is the website link I
found for you:
http://www.samsung.com/ph/smarttv/voice_control.html
This
is my second Samsung TV and I won't buy any other brand because
of the beautiful
The retired editor is coming out in me. Please do not put an apostrophe
to make a word plural. You only need to add the letter s in most cases.
So it should be cushions not cushion's. Don't mean to offend anybody,
just reminding everybody what they learned in grade school.
Carolyn
I've seen it for sale at my local pharmacy and have always wondered if
it worked well or not. I might have to pick up a tube to keep on hand
(or elsewhere if need be:-D).
Carolyn:-
My husband is not a quad, but has had heart trouble all of his life. At
one point during his childhood his blood pressure was 70/0. The doctor
took it three times and said my husband shouldn't have been alive much
less conscious. My husband said he felt perfectly fine. These bodies do
things
Can you please clarify what you mean by "different types of pills?"
Thanks.
Carolyn
Also be sure to get plenty of Vitamin C. If you're not on blood thinners
or other prescription medications that would prohibit its use, then you
need to take 6,000 mg a day. But don't get it from a grocery store or
pharmacy. Find out what the most absorbable type of C is online (my
memory
I believe my accident was the reason that Landers Road and Warden Road
in North Little Rock, Arkansas are now each one way. Someone tried to
make a left turn in front of me while they were coming out of a Walmart
parking lot. Needless to say, there wasn't enough time. I broadsided
them at 35
I am so grateful to have others to communicate with who are in a similar
situation. I have learned much from the discussions.
Thank you.
Carolyn
C3-7 Incomplete Quad
Hi All,
As this summer is supposed to be beastly hot, and I don't sweat, can
anyone point me to a good website for buying cooling clothing? I have a
baseball cap that can be soaked in water, but I don't think it's going
to be enough. It's strange, I sweat when I'm sick but I don't react to
I, too, am writing to express my sympathy. At least he made a positive
difference in the world, and for that, he will never truly be forgotten.
Carolyn Boyles
C3-7 Incomplete
going on 22 years post accident
First, thanks to all of you. I have learned so much I didn't know
since joining the loop.
Second, both my husband and myself have medical conditions. We
are on prescription medications. In the job he has just started he
has to drive himself all over the state
I still insist not if it's the right woman. My husband and I have
never been as well-to-do as we should have given our educations, but
we're still together.
My late Great Aunt had the best advice on deciding whether or not to
marry someone: if you can't stand the
When we first moved into our house there were a lot of skinks all
around. Now they have all vanished. We also had a hive of carpenter
bees. Also gone.
Seeing fewer and fewer Monarch butterflies. I understand they are
expected to become extinct within 20 years.
Hi,
Has anyone on the loop had shoulder replacement surgery? It looks
like I'm going to have to have it done later this year.
Please reply either to the loop or to me privately about your
experience.
Thanks.
Carolyn
I know this works for kidney stones and it may help for UTIs.
I'll give you links to the webpages for the items you need. I'm not
associated with any of the mentioned companies. I did this research many
years ago for my husband who gets kidney stones.
1. The first item you'll need is the
Fluoride is not an effective dental remedy, despite what the dental
community will cram down your throat that it is. The government
needed a way to get rid of all the excess fluoride so they put it in
drinking water, claiming it would improve the dental health of the
Most of you folks are more severely injured than I am, as my injury
was a crush injury to the spinal cord rather than a cut injury from
broken vertebrae.
I had both types of flu in February, and I'm not only having trouble
getting my strength back, but my spasticity
You just haven't found the right woman yet.
Carolyn
I don't think dumping tea into Boston Harbor would help much right
now, even if any of us could still lift the crates of tea. :-)
Carolyn
Not growing old as a Quad is an even great b**tch.
I need to have an arthritic shoulder replaced someday. Someday.
Carolyn
Actually, it's too cold by normal human body standards. I'm always cold.
C
Mine is complicated by the fact that I am also hypothyroid,
apparently unrelated to the SCI.
I'm usually between about 98.0 and 98.5, but lower when I'm asleep
or very sick.
C
94
First C5-7 then C4-7 from adjacent segment disease then C3-7 also
from adjacent segment disease; lucky me, I failed upward instead of
downward.
Carolyn
77 matches
Mail list logo
