Sorry it has taken so long to do this. I was given a lot of useful help and suggestions from here and I wanted to update what we have been doing. As you may remember, my wife has been suffering for almost 3 years with a bladder problem ( that has never been really diagnosed because it doesn't fit completely into any category ) that has caused her to be in almost constant pain with flare ups of intense pain, frequency with flare ups of having to go every 5 minutes, uncontrolled bladder function, bleeding, we were told the inside of her bladder looked like hamburger meat, she has been on every drug for bladder healing and every antibiotic and had 2 fulgurations after which we were told the bladder would have to be removed. This was on 7-30 of this year and confirmed the end of August at post op visit. After some research and getting advice from the helpful folks here, this is what we did.
Starting on September 3 I began doing irrigations of CS ( made with silver puppy and run on manual for tow hrs after light goes off. Not sure of the ppm, maybe Ode can weigh in on that ) once a day. I would have preferred more often but this is all we could manage. I won't go into a lot of details on this because it would make for a very long post. We started with 30cc because that was all she could handle and she only held it for 11 minutes. After a few days she could hold it for 30 minutes which was our goal She was also sitting in a hot tub for 15/20 minutes before the procedure to help relax everything We have had our share of failures due to different reasons but we got most of the bugs worked out I gradually increased the amount by 10cc a week and it was rough but she fought hard to keep it for 30 min Also added 1200mg MSM capsules once a day after the first week During the third week I started introducing some DMSO to the CS slowly building up to 2ml After 3 weeks she was out of the pain meds she was on and we decided not to refill and see what happens She had trouble sleeping for about a 4 days due to not taking one of the meds but pain was bearable She would experience involuntary spasms after stopping the muscle relaxer that would push the CS out And cause us to fail. I started her on D-Mannose and the spasms stopped. That is pretty much our regiment now except we no longer use the hot tub We don't do the procedure on the weekends The pain reduced on a daily basis till last Friday when she told me she was pain free She has control of her bladder and has no more flare ups or frequency problems She is on no medication at all for over a month She can take 4oz of CS in her bladder and hold it for 30 minutes no problem ( up from 30cc ) I can't seem to break the 4oz barrier for some reason but we don't see the doc till Feb So we will keep plugging away. We are hoping to blow his socks off Thanks again for all the help, hopefully more updates to come. Jeff
