Jeff... wonderful, wonderful news. I know you and your wife are thrilled with
wife's progress. Since you
seem to have found a protocol that works, you might think about continuing the
procedures withouttrying to continue to 'push the envelope' since what you are
doing seems to be working for y'all.... giveyour wife time to hopefully heal
completely. Isn't it something ? .... yipeee..... lol.. Lola
----- Original Message -----
From: Jeff <[email protected]>
To: [email protected]
Sent: Wed, 11 Nov 2015 16:16:56 -0500 (EST)
Subject: CS>Update on Wife's Bladder
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-->Sorry it has taken so long to do this. I was given a lot of useful help and
suggestions from here and I wanted to update what we have been doing. As you
may remember, my wife has been suffering for almost 3 years with a bladder
problem ( that has never been really diagnosed because it doesn’t fit
completely into any category ) that has caused her to be in almost constant
pain with flare ups of intense pain, frequency with flare ups of having to go
every 5 minutes, uncontrolled bladder function, bleeding, we were told the
inside of her bladder looked like hamburger meat, she has been on every drug
for bladder healing and every antibiotic and had 2 fulgurations after which we
were told the bladder would have to be removed. This was on 7-30 of this year
and confirmed the end of August at post op visit. After some research and
getting advice from the helpful folks here, this is what we did. Starting on
September 3 I began doing irrigations of CS ( made with silver puppy and run on
manual for tow hrs after light goes off. Not sure of the ppm, maybe Ode can
weigh in on that ) once a day. I would have preferred more often but this is
all we could manage. I won’t go into a lot of details on this because it would
make for a very long post. We started with 30cc because that was all she could
handle and she only held it for 11 minutes.After a few days she could hold it
for 30 minutes which was our goalShe was also sitting in a hot tub for 15/20
minutes before the procedure to help relax everythingWe have had our share of
failures due to different reasons but we got most of the bugs worked outI
gradually increased the amount by 10cc a week and it was rough but she fought
hard to keep it for 30 min Also added 1200mg MSM capsules once a day after the
first weekDuring the third week I started introducing some DMSO to the CS
slowly building up to 2mlAfter 3 weeks she was out of the pain meds she was on
and we decided not to refill and see what happensShe had trouble sleeping for
about a 4 days due to not taking one of the meds but pain was bearableShe would
experience involuntary spasms after stopping the muscle relaxer that would push
the CS outAnd cause us to fail. I started her on D-Mannose and the spasms
stopped. That is pretty much our regiment now except we no longer use the hot
tubWe don’t do the procedure on the weekendsThe pain reduced on a daily basis
till last Friday when she told me she was pain freeShe has control of her
bladder and has no more flare ups or frequency problemsShe is on no medication
at all for over a monthShe can take 4oz of CS in her bladder and hold it for 30
minutes no problem ( up from 30cc )I can’t seem to break the 4oz barrier for
some reason but we don’t see the doc till FebSo we will keep plugging away. We
are hoping to blow his socks offThanks again for all the help, hopefully more
updates to come.Jeff
