My Motto=Stay away from doctors, they'll kill ya.... Smitty On Wed, Nov 11, 2015 at 1:18 PM, Lena Guyot <drumr...@stny.rr.com> wrote:
> Hi Jeff, > > Your story is inspiring! Congratulations! Meanwhile, we need more sockless > docs: and patient, persistent, determined people like you and your wife are > the people to create them! > > Be well, > Léna > > On Nov 11, 2015, at 4:16 PM, Jeff wrote: > > Sorry it has taken so long to do this. I was given a lot of useful help > and suggestions from here and I wanted to update what we have been doing. > As you may remember, my wife has been suffering for almost 3 years with a > bladder problem ( that has never been really diagnosed because it doesn’t > fit completely into any category ) that has caused her to be in almost > constant pain with flare ups of intense pain, frequency with flare ups of > having to go every 5 minutes, uncontrolled bladder function, bleeding, we > were told the inside of her bladder looked like hamburger meat, she has > been on every drug for bladder healing and every antibiotic and had 2 > fulgurations after which we were told the bladder would have to be removed. > This was on 7-30 of this year and confirmed the end of August at post op > visit. After some research and getting advice from the helpful folks here, > this is what we did. > > Starting on September 3 I began doing irrigations of CS ( made with silver > puppy and run on manual for tow hrs after light goes off. Not sure of the > ppm, maybe Ode can weigh in on that ) once a day. I would have preferred > more often but this is all we could manage. I won’t go into a lot of > details on this because it would make for a very long post. > > We started with 30cc because that was all she could handle and she only > held it for 11 minutes. > After a few days she could hold it for 30 minutes which was our goal > She was also sitting in a hot tub for 15/20 minutes before the procedure > to help relax everything > We have had our share of failures due to different reasons but we got most > of the bugs worked out > I gradually increased the amount by 10cc a week and it was rough but she > fought hard to keep it for 30 min > Also added 1200mg MSM capsules once a day after the first week > During the third week I started introducing some DMSO to the CS slowly > building up to 2ml > After 3 weeks she was out of the pain meds she was on and we decided not > to refill and see what happens > She had trouble sleeping for about a 4 days due to not taking one of the > meds but pain was bearable > She would experience involuntary spasms after stopping the muscle relaxer > that would push the CS out > And cause us to fail. I started her on D-Mannose and the spasms stopped. > > That is pretty much our regiment now except we no longer use the hot tub > We don’t do the procedure on the weekends > The pain reduced on a daily basis till last Friday when she told me she > was pain free > She has control of her bladder and has no more flare ups or frequency > problems > She is on no medication at all for over a month > She can take 4oz of CS in her bladder and hold it for 30 minutes no > problem ( up from 30cc ) > I can’t seem to break the 4oz barrier for some reason but we don’t see the > doc till Feb > So we will keep plugging away. We are hoping to blow his socks off > Thanks again for all the help, hopefully more updates to come. > Jeff > > >
