Dear Pat,

  You said:

<<Hi, my name is Pat Gurnick. I was told this past fall that I have a
pituitary tumor, Cushings Disease. I

I am also Director of CEFCA Website Support, www.montagestudio.com/cefca
I had the CEFCA Disorders a few years before the tumor developed, and I
think there is a relationship between Chronic Fatigue and Immune Dysfunction
Syndrome (CFIDS) and Cushings Disease - the HPA Axis is dysfunctional in
CFIDS and can roll over into developing many things, such as tumors...Lack
of Adrenal hormones can do so many things. Well, I am seeking alternative
methods to treat this. I am torn over the thought of surgery, because of the
major depression that will come after the tumor removal, and  all the
medications that will be needed. I am also chemically sensitive so anything
I take will make it worse. Plus, taking antidepressants makes my
Fibromyalgia so bad that I cry in pain, so this road will be a very
difficult one for me. Than, reading about its 50% success rate (for Macro's
which I have), I am concerned....

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  I read this with great interest as I've also been diagnosed as having
Cushing's Disease.  But I have to ask - why are you posting this to the
silver list?
There is a new Cushing's Support Group with a leaning toward
non-conventional treatment on Yahoo Groups.  You can write to the
owner-moderator if you wish.  Her name is Irene and email is
[email protected]  You may tell her that Catherine Creel told you
about her group.

The group can be found here:

http://groups.yahoo.com/group/Cushingsfriends/

Regards,
Catherine




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