----- Original Message -----
Sent: Saturday, January 07, 2006 8:53
PM
Subject: Re: [TMIC] mechanisms of
pain
Hi Jude,
That was me (Linda) talking about the miracles of Lyrica. My neuro
gave me a one month supply, started me slowly until I reached the maximum dose
(2 pills a day total 100mg), I had NO side effects and almost NO pain at all!
I could not believe it. I had some of my life back! He had weaned me down to
almost no neurontin by then. He then gave me a prescription for Lyrica but my
insurance company would not cover it. The doctor appealed 3 times -
still the answer was NO. It is an absolutely great drug and you do not
have to take neurontin once you reach the max dose of Lyrica.
I am going to do what Sally suggested. Call the company who makes Lyrica
and explain to them what has happened and plead my case for all TMers. Maybe
they will feel generous and give us a good deal on the cost or even give us
some for free! That's even better.
I was up half the night last night first with legs and feet that were so
cold I simply could not get them warm. Then I woke up after a whole 2 hours of
sleep with legs and feet that were on fire. They still are.......so very
painful........I feel like screaming : - )
Hope that answers your questions. I will let everyone know what I find
out from the makers of Lyrica.
Love to all
Linda in rainy, windy Bothell, WA
--------------
Original message --------------
From: [EMAIL PROTECTED]
In a message dated 1/7/2006 6:31:09 AM Central Standard Time,
[EMAIL PROTECTED] writes:
Sally, you are also very fortunate not to have pain. I can't even
imagine. I have had pain since 1988, starting with the joint pain, and
then TM hit 4 years ago. The first year was the "best" (if there could
possibly be one!) because I didn't have any feeling from my chest down.
Then after about a year, wowser - exploding neuropathic pain. I did get a
month supply of Lyrica a few months ago from my doctor - I could not
believe the difference. Almost NO pain. Oh - and I had no side effects,
lucky me. However my insurance company won't cover it! So I'm back to
neurontin which quite frankly only just barely takes the edge off.
And I agree, I continue to pray for those in pain and for those with
other related symptoms that go along with TM.
Love you all
Linda in Bothell, WA - yep, still raining!
--------------
Original message --------------
From: [EMAIL PROTECTED]
I am with Alton as far as the pain goes, I have never
had any of that with TM. I do feel so sorry for the ones that have the
pain you can't get under control. I have had pain in 79 and nothing took
it away. It went on for several weeks in the beginning and then 4 weeks
at a time off and on during 5 mos or so. I pray all the time for those
of you in pain, even those that don't and yet have other types of not
really pain but so so.
Hope you take care and have a better day
today.
Love ya all
Sally
NC
Hi,
I am not sure if I am replying to Linda or Sally, so
please forgive me. I seem to be missing a lot of emails and only a few
come through giving me only a portion of the communication going on between
TM members.
My doctor just gave me a script for Lyrica. Linda,
are you the one who is now taking it? Can you give me a bit more
feedback about it? Are you having more side effects and is it still
working so well on the pain??
My pain level is way up these days, with two broken legs
to tend with as well as the neuropathic pain from TM. My doc told me
to back off of the Neurontin while on the Lyrica. Did you notice any
effects from not taking the Neurontin any longer? I've been on it so
long now, I am afraid to be without it.
Please get back with me as soon as you have the
time. I really need help with my pain and probably ought to start the
Lyrica.
Thank you so much,
Peace and Love,
Jude
No virus found in this incoming message.
Checked by AVG Free
Edition.
Version: 7.1.371 / Virus Database: 267.14.15/223 - Release Date:
1/6/2006
