I have had facial involvement from tm. It intensifies when I am tired/fatigued/too hot. It really affects my nose, lips, chin and cheeks. I have the eye muscles twitches, too. Sometimes it is so significant that my face itches so bad I would like to scratch it to pieces. It usually begins with tingling and progresses. After a day or so of good rest, it goes away.
 
I just chalk it up to one more inconvenience that tm has delivered.
Debbie in SC
----- Original Message -----
Sent: Wednesday, May 17, 2006 9:34 AM
Subject: [TMIC] Weird feelings around eyes

When TM first came to take up residence, most of my symptoms were in my left arm and lower trunk and legs. But there was one very very sensitive spot right on top of my head (made getting haircuts interesting -- I felt like I was going to jump out of my skin) and one of my eyelids was at half-mast. The neurologist I saw the first couple of days was puzzled over the eyelid, saying that that was "a brain thing." The MRI and CAT scan showed everything was ok with my brain, though. But when I had PT, the therapist said her chart listed TM and encephalitis -- but nothing had ever been said to me about the latter. I never really went back to question it, though, because I was out of the hospital then and on the road to improvement (and it may be that in my lists of questions I'd take when I saw the neuro, I just didn't think to ask about it).
 
Eventually my eyelid righted itself, although the sensitive spot in my head remained.
 
It seems like I remember reading here that TM usually doesn't affect the head. Is that right? Would symptoms in your face or head indicate brain involvement?
 
Over the past few months I've had these weird feelings around my eyes. I'll look in the mirror, squint, wink, etc., and everything seems to function -- just feels weird. It isn't constant, but off and on. Then last week during one of those weird feelings, one eyelid was a little lower, and the other was open way wider than usual (looked very strange). It righted itself within a few minutes.
 
I asked my dr. about it, and it said it must be related to the TM. I do have weird little muscle spasm or twitchy things going on in other muscle groups.
 
Do you think this is just one of those TM things or does it warrant further investigation? Anyone else experience this?
 
Barbara H.

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