I was hit with TM on Labor Day Weekend 1997. I sat on the couch watching the news about Princess Diana's death and wondering what was wrong with me. I thought I must have pinched a nerve or something. I became totally numb from my lower ribs on the left side to the tips of my toes, as if I had been divided down the middle. I lost bladder control. I was still able to walk by dragging my leg. The neuro said "Transverse Myelitis" and I had never heard of it before. I found this group and I knew early on that I was one of the "lucky ones". It was later that I came to the conclusion that many of the "lucky ones" turned out to have MS.
I'm sure you know that with MS you have little flare ups as well as big flare ups (exacerbations). And with MS there are treatments now. It wasn't always like that so we are very fortunate. It could be a lot worse.
You aren't crazy. (At least I don't think you are) Have you called your neuro with these little flare ups? Feel free to email me privately if you wish. Good luck to you in your journey.
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant
----- Original Message ----
From: Jill Z <[EMAIL PROTECTED]>
To: [email protected]
Sent: Monday, August 7, 2006 8:15:52 PM
Subject: [TMIC] Crazy Question
From: Jill Z <[EMAIL PROTECTED]>
To: [email protected]
Sent: Monday, August 7, 2006 8:15:52 PM
Subject: [TMIC] Crazy Question
Although I feel I'm VERY fortunate to be able to walk unassisted, I feel like I have "little flare-ups" from time to time with my left leg and right foot going numb and even feeling like a raw/burning feeling. Is that normal?
I also feel like a tingly feeling in my head sometimes?
I don't know if it's just driving me crazy and I need an ativan or is it just the TM reminding me that it's there lurking and ready to come back or even turn into MS.
This has been for about a week or two now.
I was diagnosed in Dec. 2005 and have made great strides since then thank God.
Jill
36, Chicago
T 10-11
