Jill - oh thank you for writing. I have not seen any posts about people
having these pains in their head! I thought I was all alone on that one. And,
yes, they are very very scary - new lesions and aneurism or even worse have all
crossed my mind. I have had them every single day, on and off all day long, and
most of the time now when it happens I say out loud to myself "gee that was a
nice pain" - My neuro now wants to do a brain MRI - I can't even imagine what is
causing this. How long have you had the pains?
Hugs to you - hang in there
Linda C
----- Original Message -----
Sent: Tuesday, September 05, 2006 5:06
AM
Subject: Re: [TMIC] tm
Linda,
YES YES YES I've had the head thing and my lesion is at T10-11 as of last
year. I am so scared that those "head pains" are new lesions forming or
an aneurism or something???? I'm going to see the neuro on
10/18. I've written on here before about the head pains but not
"headaches" and no one seemed to have them at all?? Sounds like we're in
the same boat with that....
Jill
L T CHERPESKI <[EMAIL PROTECTED]>
wrote:
A question to Linda Elgi - your description of how your TM started
intrigues me. Do you know where your
lesion is? I have some of those symptoms also, and my lesions are
are C4,5&6. And I have had a NEW and even better symptom than all of the
others I have - I have shooting pains on the right side of my head, shooting
clear over the top almost to my forehead. Have had them about 8 weeks now.
Not fun. Neuro not completely sure what is going on - still more testing -
the never ending tests. Has anyone else had this happen - the head
thing?
Thanks
Linda C
----- Original Message -----
Sent: Monday, September 04, 2006 2:49
PM
Subject: RE: [TMIC] tm
Mine hit me all at once, in half hours time.Started with a
tingly in my low back, and progressed to my legs geting rubbery and
falling alseep and that was it...lost both my legs and got rushed to the
hosp.
Linda Egli <[EMAIL PROTECTED]>
wrote:
My
symptoms came on over a 6 week period. Started with numbness in
hands & feet, moved to arms & legs, then to trunk & chest
with banding below my shoulder & thankfully stopped there. Took
about 6 months for all this to level out & now left with numbness
esp. in hands and feet, fatigue with anything I do, & poor
balance. My main problem now is increasing tremors in my right
hand & now some in lower jaw (have never heard anyone mention this),
but my neuro thinks it is normal.
Jill Z
<[EMAIL PROTECTED]> wrote:
Mine
came on gradually also. I thought it was Cauda Equina Syndrome
again like my dr. said the first time 2 yrs
ago....
"Butcher, Bernie [S&FS]"
<[EMAIL PROTECTED]> wrote:
I think mine
came on gradually - when I thin back to what happened before I went
totally numb, tingly and lame on my left side, there were some
instances where I think it may have been my spinal condition:
walking wobbly, bumping into things, spilling coffee , klutzy kinda
things.
BERNARD
BUTCHER
I notice that every thing refers to acute TM. Has anybody
in the group had TM that has come on gradually. Everyone
should read the link that Frank sent about GP's. There I guess
is nothing we can do about this but we certainly should be
informed. At a hospital here in Virginia who employs
physicians unless they see patients in an allotted time the
physician is asked to leave. Am afraid that this is becoming
the norm and is certainly a poor way to practice good
medicine.
Ann in
Virginia
Krissy
Zodda
Tri State Support Group
Leader
(603)589-1894
http://www.geocities.com/tmladyk/home.html
~I'm
In pretty Good Shape
For the Shape I am in~
|
