Diane,
Thanks for the compliment. If someone had told me I would have been in pain
since 1987 non-stop and on disability since 1994; I would have told them you
are crazy. But life hands you a deck of cards that you often wonder why. And
then you think I have to go on with the play as the other side would even be
worse for my family. My husband says he would have never gone thru what I
have, even now. I have to say I do wish so much I had, had less pain in my
life, so my husband and I and our child could have done more. My young
daughter would not see her mother crying and crying in pain out of her head.
It gets so old. I have always for some reason had severe pain come on often.
I will turn on tv if it isn't on to try and get my mind off it and then it gets
so bad I can't even see the tv for the tears. It would kill me to see my
husband go thru what I have. But life must go on somehow, so we can enjoy the
good days. Every time I get out of bed I get a drink and come
in here to see how everyone is; that is already how important this group means
to me. People's stories are people's lives and we all learn something, don't
we??? Thanks, Natalie M.
Diane <[EMAIL PROTECTED]> wrote: Couldn't resist it Natalie.......you
forgot the M. at the end. :>)
You sound like one courageous lady. Although I learned to walk after TM
(sort of) the neuropathic pain only started about five yrs. ago. The doctors
have had a time trying to find the right med. Even mild narcotics make me
hallucinate. I tried pot but that didn't help much. I take Lyrica which takes
the edge off. On really bad days, I take up to 10 Tylenol X-tra. Doc says my
liver is working well and there is no harm if I don't overdo. If I sit
quietly, the pain isn't as bad. That brings to mind the12 pressure
sores.....but that's another show.
Pain changes who we are, I think. I too get depressed sometimes but it
doesn't last very long. I can just imagine 20 + years of it. Whew.
Take care,
Diane in Canada (TM 1999)
From: natalie mizenko
To: Transverse Myellitis
Sent: Saturday, June 09, 2007 7:48 PM
Subject: Re: [TMIC] Getting Humble...
Jude,
I usually try to sign my name with Natalie M. to tell the difference of us,
but sorry I forget the M. this time. It is easy to forget. If you look back
over some of my emails I have often used the M. at the end to tell the dif.
I am in a wheelchair 24/7 or whenever I decide to get my bootie out of bed.
Today was pretty bad and I stayed in bed til my husband got home from work.
(He has Air National Guard duty this weekend). My feet are getting severe
electrical shocks; I ran short on my duragestic patches cause we were changing
them on the 3rd day; not 4th day; as we didn't know. So, I'm sure that is why
I'm in pain. I have so time-released Morphine pills, but I took them & they
don't work as well as the patch does - at least not yet. I could never work w/
the pain I have anyway; I've been in bad pain for 20 plus years; however, being
paralyzed makes it even harder I will admit. As I told my husband today which
I rarely will admit "I get depressed sometimes during the day" and he said
"yeah". He's not a big talker. I understand that, after 30 years of marriage.
Natalie
[EMAIL PROTECTED] wrote: Hi Natalie,
Now there are two of you on the List which is going to cause me unknown
difficulties. Please when you write to me, will you let me know that you are
the New Natalie or Natialie 2 or something like that?
I am so glad that you have found a place where you can find a mixture of
information, debates and even joking around.
Every once in a while things can get a bit dicey between two or more people,
but arguing doesn't last long and we get things out of our systems quickly
enough.
How does your TM affect you? Are you among the "walking wounded" or are you,
like me, in need of a wheelchair all of the time?
Have you told us your story? I take so much medication that my memory is
highly compromised so please forgive me if I forget things that you tell me
from one email to the next. Eventually, things sink in and I will know who you
are.
Good to meet you; God Bless You,
Jude
"Our present troubles are quite small and won't last very long. Yet they
produce for us an immeasurably great Glory that will last forever"
2 Corinthians 4:17
NLT
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