Candy,
Yours sound like people I have spoken w/ at Baylor that were in a car wreck
and they had rigid spasms. I was on Baclofen for a long time even before TM
hit & when I went to this dr. in Little Rock, AR, who is over the Spinal Cord
at a huge med center here, he took me off it, cause I don't have spasms like
that. You might want to try Baclofen. I "think" it is for that type of spasm.
I wish you well, Natalie M.
cakalley <[EMAIL PROTECTED]> wrote: Natalie,
Sorry to take so long in answering. I'm having my place remodeled - wood
laminate floors instead of carpet; kitchen redone to make it easier to get
around to do things, the laundry was outside and now making room inside so that
I don't have to go up/down 3 steps.
Answer to your question - I'm not sure if I experience the same thing. My right
leg spasms the most especially first thing in the morning or if I've been in
one position too long. My right leg will draw up and only the toes will be on
the floor, as if I was a ballerina, and it takes several minutes for me to
"work" out the kink meanwhile the darn leg wants to dance around if that makes
any sense.
As far as deep in my leg - yes at times the right calf feels and looks like one
gigantic charlie horse - the muscle is really tight - and it hurts like H _ _
L! Thank GOD it only last at most a minute but it seems like hours while it is
happening. I have also experienced the "charlie horse" feeling in my hands
especially when I'm tired and I try to cut something when I'm cooking or eating
OR when I crochet or knit. Nothing seems to help but to just try to relax by
doing deep breathing and clearing my mind.
The TENS unit has reduced the spasms and the terrible lower back pain but the
spasms and pain still occur. I even sleep with my TENS unit running. The
morning is still the worse. I guess TM still has to remind me daily.
The "knife" feeling is more in my lower back - especially with any movement,
barametric changes, or the cold weather. Once again, the TENS unit has helped
but I find that I keep increasing the strength as the day wears on. I may start
out with a 11 or 12 but by the end of the day I usually have it sit on 19 or
20. On the pain level that the Dr., nurse, or PT always ask about is maintained
at about a 5 to 7. Without the TENS, the pain level would be a 5 upon waking
but esculate to a 9 or 10 with movement, barametric changes, or the cold
weather. Then I would take all kinds of pain meds and sleep most of the time.
I hope that I have answered your questions.
Prayer and thoughts for you and yours,
Candy K.
-----Original Message-----
>From: natalie mizenko
>Sent: Aug 11, 2007 6:24 PM
>To: Transverse Myellitis
>Subject: RE: [TMIC] Anyone else?
>
> Candy,
> Do you have muscle spams deep in your legs and at times it will go on & get
> stronger and stronger. You can't see the skin jerking, but it is like it is &
> then it stays there and it is like a knife in your leg then. Is yours like
> that? Thanks, Natalie M.
>
>
>
>cakalley wrote: Natalie,
>Generic name is tizanidine. Zanaflex is suppose to help with the muscle
>spasms. However, my TENS unit has done much better in reducing the muscle
>spasms plus relieving the lower back pain. I hardley take any pain meds now -
>only on the VERY BAD days usually the day after I've done too much the
>previous day or its going to rain - waiting to see about the cold weather!
>Hope info helps.
>Prays and thoughts for each and everyone,
>Candy K.
>
>-----Original Message-----
>>From: natalie mizenko
>>Sent: Aug 11, 2007 10:55 AM
>>To: cakalley
>>Subject: RE: [TMIC] Anyone else?
>>
>> Candy,
>> What is Zanaflex? I've never heard of it. Is it like Zanax? Natalie M.
>>
>>
>>
>>cakalley wrote: I take zanaflex and experience the dry mouth. It seems worse
>>in the morning, sometimes even waking me up. However, I have experienced very
>>dry mouth feelings during the day especially if I had been doing something
>>labor intense or after walking distances.
>>Candy K.
>>
>>-----Original Message-----
>>>From: marieke dufresne
>>>Sent: Aug 9, 2007 7:55 PM
>>>To: [EMAIL PROTECTED], [email protected]
>>>Subject: RE: [TMIC] Anyone else?
>>>
>>>Hi Natalie,
>>>About the dry mouth, what meds are you on? Many of them have this as a side
>>>effect, especially Ditropan (for the bladder).
>>>Marieke
>>>
>>>
>>>>From: natalie mizenko
>>>>To: Transverse Myellitis
>>>>Subject: [TMIC] Anyone else?
>>>>Date: Thu, 9 Aug 2007 16:53:19 -0700 (PDT)
>>>>
>>>> To the group:
>>>> Has anyone ever experienced a very dry mouth, especially through the
>>>>night and in the morning. Also, last night my arms were hurting me so
>>>>badly, and I have not been anywhere but hom. Especially from my elbow to
>>>>my wrist. I have a knot under the skin on both arms in that area. They
>>>>were worse last night & this morn. but today they were some better, after
>>>>all I ended up taking a pain pill. This has never occurred so badly. I've
>>>>been noticing the mouth, but not the arms, til last night. Natalie M.
>>>>
>>>>
>>>>
>>>>---------------------------------
>>>>Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user
>>>>panel and lay it on us.
>>>
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>>>
>>
>>
>>Candy K.
>>
>>
>>
>>
>>---------------------------------
>>Shape Yahoo! in your own image. Join our Network Research Panel today!
>
>
>Candy K.
>
>
>
>
>---------------------------------
>Moody friends. Drama queens. Your life? Nope! - their life, your story.
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Candy K.
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