Natalie, Please know that you are not alone on this subject. I have heard "we will never be able to plan anything" and MORE! Please remember sweetie, there are others who are going through the same thing. Sad, but true. Take care
Linda ----- Original Message ----- From: natalie mizenko<mailto:[EMAIL PROTECTED]> To: Transverse Myellitis<mailto:[email protected]> Sent: Wednesday, August 15, 2007 7:26 PM Subject: Re: [TMIC] Anyone else? Grace, Thanks for telling me about that. I just got out of the hospital again this week for having severe, excruiating spasms. They have to give me Dalauid 3 injects IV & send me up to the floor then. I am so sick of them. My husband said the other day when he was here and they hit "We will never be able to plan anything". My daughter and son-in-law have lived in their new house they designed in Springfield, MO for 3 years and we have been their once due to 3 surgeries on my back before TM and then TM and all the spasms. I have to tell my doc. Thanks again, Natalie M. "Grace M." <[EMAIL PROTECTED]> wrote: Hi Natalie, I used to get terrible debilitating spasms, along with posturing. At the end, they were coming 20-30 times per day. They hospitalised me two years ago to determine what type they were, and ended up putting me on Tegretol. Currently I take 800mgs per day and it's wiped them out. Occasionally, I will have breakthrough spasms, but I am able to ride them out. Neuro told me that the type of medication depends on what type of spasm they are, (Tonic, clonic, dystonic--I think I got that right.) Grace cakalley <[EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]>> wrote: Natalie, Generic name is tizanidine. Zanaflex is suppose to help with the muscle spasms. However, my TENS unit has done much better in reducing the muscle spasms plus relieving the lower back pain. I hardley take any pain meds now - only on the VERY BAD days usually the day after I've done too much the previous day or its going to rain - waiting to see about the cold weather! Hope info helps. Prays and thoughts for each and everyone, Candy K. -----Original Message----- >From: natalie mizenko >Sent: Aug 11, 2007 10:55 AM >To: cakalley >Subject: RE: [TMIC] Anyone else? > > Candy, > What is Zanaflex? I've never heard of it. Is it like Zanax? Natalie M. > > > >cakalley wrote: I take zanaflex and experience the dry mouth. It seems worse in the morning, sometimes even waking me up. However, I have experienced very dry mouth feelings during the day especially if I had been doing something labor intense or after walking distances. >Candy K. > >-----Original Message----- >>From: marieke dufresne >>Sent: Aug 9, 2007 7:55 PM >>To: [EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]>, [email protected]<mailto:[email protected]> >>Subject: RE: [TMIC] Anyone else? >> >>Hi Natalie, >>About the dry mouth, what meds are you on? Many of them have this as a side >>effect, especially Ditropan (for the bladder). >>Marieke >> >> >>>From: natalie mizenko >>>To: Transverse Myellitis >>>Subject: [TMIC] Anyone else? >>>Date: Thu, 9 Aug 2007 16:53:19 -0700 (PDT) >>> >>> To the group: >>> Has anyone ever experienced a very dry mouth, especially through the >>>night and in the morning. Also, last night my arms were hurting me so >>>badly, and I have not been anywhere but hom. Especially from my elbow to >>>my wrist. I have a knot under the skin on both arms in that area. They >>>were worse last night & this morn. but today they were some better, after >>>all I ended up taking a pain pill. This has never occurred so badly. I've >>>been noticing the mouth, but not the arms, til last night. Natalie M. >>> >>> >>> >>>--------------------------------- >>>Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user >>>panel and lay it on us. >> >>_________________________________________________________________ >>Windows Live Hotmail is the next generation of MSN Hotmail. It's fast, >>simple, and safer than ever and best of all - it's still free. Try it today! >>www.newhotmail.ca?icid=WLHMENCA146<http://www.newhotmail.ca/?icid=WLHMENCA146> >> > > >Candy K. > > > > >--------------------------------- >Shape Yahoo! in your own image. Join our Network Research Panel today! Candy K. ------------------------------------------------------------------------ Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. <http://us.rd.yahoo.com/evt=48224/*http://sims.yahoo.com/> ------------------------------------------------------------------------------ Got a little couch potato? Check out fun summer activities for kids.<http://us.rd.yahoo.com/evt=48248/*http://search.yahoo.com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz>
