I agree, Linda! That is why I said that I wished some neuro's and providers would learn from everything we write about and maybe some one person that comes into their office with similar symptoms then they can wisely help them instead of just shrugging their shoulders and saying, "Ahhh, right...you have Transverse Myelitis." and yes, that is exactly what happened to me, not once but twice by two different neurologists!
I, too, have red splotches on my skin mostly on the right side and right
foot. The skin also gets flaky around the splotchy area. I use Neosporin
which helps. Both of my legs feel like they are in ice water but when you
touch the right one which is the strongest but worst when it comes to pain
and spasms, it is warm. The right one always feels much cooler. All of
these strange things, right??
When I was still nursing one of the Internists I worked with was going to
help me get a series of questions together for patients with TM to see what
we all have in common both before and after the onset. Since I was unable
to continue working because of the loss of stamina so we didn't get it done.
We still can do that. I think it would be very interesting. I wouldn't
mind starting it if we could get enough interest?? Think about it. It
would probably be a big help for people to use in going to their own
providers.
Jeanne in Dayton
-------Original Message-------
From: [EMAIL PROTECTED]
Date: 3/20/2008 5:39:18 PM
To: [EMAIL PROTECTED]
Subject: Re: Sweating
I think we all need to put our heads together and figure some of this stuff
out. I am very aware of every little difference in my body. Some one said
they don"t sweat in certain areas, same is true for me. Someone else said
their skin is very dry in affected areas, so is mine. My legs are affected
even though I can walk. May sound little gross, but I don't grow much hair
on my legs either. SORRY ALL YOU GENTLEMEN OUT THERE IF THAT'S A LITTLE
GRAPHIC!! I just am trying to see what things we have in common. Anybody
have any weird things they have noticed. One more thing, I notice subtle
red blotches under my skin.
Linda in Pa
Create a Home Theater Like the Pros. Watch the video on AOL Home.
<<10_footer.gif>>
