Didn't Jim L. have a question survey in the past? I know I printed a lengthy survey from the TMA website, but I didn't finish filling in the survey and didn't mail it in the time period they needed it, to be data entered into a system. It would be great if we knew of the results of that survey and/or adding that same survey again for the ones that didn't get it done the first and for the new members we have now. Just a thought, Todd in CC, TX
jrushton <[EMAIL PROTECTED]> wrote:
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X-ASN,X-ASH,X-AN,X-AP,X-AD ; I agree, Linda! That is why I said
that I wished some neuro's and providers would learn from everything we write
about and maybe some one person that comes into their office with similar
symptoms then they can wisely help them instead of just shrugging their
shoulders and saying, "Ahhh, right...you have Transverse Myelitis." and yes,
that is exactly what happened to me, not once but twice by two different
neurologists!
I, too, have red splotches on my skin mostly on the right side and right
foot. The skin also gets flaky around the splotchy area. I use Neosporin
which helps. Both of my legs feel like they are in ice water but when you
touch the right one which is the strongest but worst when it comes to pain and
spasms, it is warm. The right one always feels much cooler. All of these
strange things, right??
When I was still nursing one of the Internists I worked with was going to
help me get a series of questions together for patients with TM to see what we
all have in common both before and after the onset. Since I was unable to
continue working because of the loss of stamina so we didn't get it done. We
still can do that. I think it would be very interesting. I wouldn't mind
starting it if we could get enough interest?? Think about it. It would
probably be a big help for people to use in going to their own providers.
Jeanne in Dayton
-------Original Message-------
From: [EMAIL PROTECTED]
Date: 3/20/2008 5:39:18 PM
To: [EMAIL PROTECTED]
Subject: Re: Sweating
I think we all need to put our heads together and figure some of this stuff
out. I am very aware of every little difference in my body. Some one said
they don"t sweat in certain areas, same is true for me. Someone else said
their skin is very dry in affected areas, so is mine. My legs are affected
even though I can walk. May sound little gross, but I don't grow much hair on
my legs either. SORRY ALL YOU GENTLEMEN OUT THERE IF THAT'S A LITTLE GRAPHIC!!
I just am trying to see what things we have in common. Anybody have any weird
things they have noticed. One more thing, I notice subtle red blotches under
my skin.
Linda in Pa
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