Hi Wim - I think you are right about Baclofen - I think it is doing a number on me. I am very weak now - it's very hard to get up from sitting & my lower back is in pain.
It's even difficult to sit up straight. I don' think it's from exercise although I am taking a break from it now fof the most part. I spoke to my neuro yesterday & she said I could go from 20mg/day to 10mg. She also said it should get better over time (?). She also said the pump will help because it injects a tiny amount into my spine only, not a larger amount into my system like the pills Barney ________________________________ From: wim from holland [mailto:[EMAIL PROTECTED] Sent: Wednesday, September 03, 2008 8:57 AM To: Butcher, Bernard G (NY80); tmic-list-at-eskimo.com Subject: RE: [TMIC] I am on 60mg a day now. You have to find for your self the good combination, between the amount of Baclofen and the movement you still can do the best. Baclofen is taking away some strength, but it also take away the stiffness. Normal you start with a low dose of 15 a day, and after a few month you can say if it is enough or you go to a higher dose. In that time I had also trouble with short memory loss, if it was the Baclofen or the TM, still don't know. Now it is almost back to normal. Wim ________________________________ Subject: RE: [TMIC] Date: Mon, 25 Aug 2008 08:21:41 -0400 From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [email protected] Thanks Wim - interesting - - have you tried Baclofen? I also can walk (with walker) and since taking baclofen pills for 1 1/2 weeks, it has gotten harder to do - especially getting up - I have been blaming it on over-exercise, I have been getting down on the floor & doing some exercises a couple of days per week, and I am going to stop for a while to see if it improves. BERNARD BUTCHER ________________________________ From: wim from holland [mailto:[EMAIL PROTECTED] Sent: Saturday, August 23, 2008 6:43 PM To: Butcher, Bernard G (NY80); tmic-list-at-eskimo.com Subject: RE: [TMIC] My neuro told me that a pump is not a good idea. Because the stiffness I can stand on my legs, even walk a little with crutches. Handy for going to a toilet or take a shower. When a pump is installed, standing is out of the question, no stiffnes and bad feelings is one, but no function is for me out of the question. Wim > Date: Fri, 22 Aug 2008 16:18:32 -0400 > From: [EMAIL PROTECTED] > To: [email protected] > Subject: [TMIC] > > > Hi all - I was told by my neuro that I may need to get a baclofen pump. > Right now I am taking baclofen pills, and next (if I have no bad > reactions, I guess) I have to go through an evaluation test whereby they > inject baclofen into my spinal cord - then the pump gets installed with > a tube which automatically injects small amounts of baclofen into my > spinal cord. > Has anyone gone through this process? Stiffness is one of my biggest > problems right now & she tells me the pump is the way to go. Sounds > scary, the pump is actually inside me. > > BARNEY > > ________________________________ Je foto's bewerken en in elkaar laten overlopen met Windows Live Photo Gallery <http://get.live.com/nl-nl/wl/all> ________________________________ Je foto's bewerken en in elkaar laten overlopen met Windows Live Fotogalerij <http://get.live.com/nl-nl/wl/all>
