First off, Jude suffers so much and what she wrote is so  selfLESS.   She is 
always thinking of someone else.   We  love you Jude!
 
As a caregiver I will put my 2 cents in.   I SO sympathize with  the daily 
pain that goes with TM.  I KNOW, but I don't FEEL the pain.   I know it because 
Terry is so very articulate about it, and it pains me  emotionally to see such 
horrific pain.   I think all of you that know  me and how I react to him and 
TM.   
 
With that said, this is what we need  occasionally:  Just need a little 
sympathy and for you to tell us that you  are sorry we are in pain.  We just 
need a 
little validation that our  pain still matters.  Pain is relevant to each 
individual.   We  can't take that away.  UNLESS you live with a chronic 
complainer, of  course!  I try not to complain because my pain, (2 or 3 
partially  and 
2 complete herniated discs and rheumatoid arthritis), is minimal  relative to 
Terry's.  But it is MY pain and it does hurt at  times.   So, when those of us 
that complain minimally, give us a  minute, tell us your sorry for our pain, 
and wait for a little bit if you need  sympathy for your pain.  A few short, 
sweet words go a long way! 
 
Sandy
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