Mindy, great news to hear that you have improved after your 2yr anniversary. I
whole-heartedly agree with Janice. I think you will continue to improve. Take
care and please keep us updated.
Linda
----- Original Message -----
From: Janice<mailto:[email protected]>
To: Lawrence King<mailto:[email protected]> ;
[email protected]<mailto:[email protected]> ;
[email protected]<mailto:[email protected]>
Cc: Lawrence King<mailto:[email protected]>
Sent: Saturday, July 25, 2009 9:24 PM
Subject: Re: [TMIC] TM
Hang in there, Mindy. Sounds like you can still improve!
Janice
----- Original Message -----
From: Lawrence King<mailto:[email protected]>
To: [email protected]<mailto:[email protected]> ;
[email protected]<mailto:[email protected]>
Cc: Lawrence King<mailto:[email protected]>
Sent: Saturday, July 25, 2009 11:51 AM
Subject: Re: [TMIC] TM
Whoa there!
your statement regarding true TM and Paralysis is incorrect! Acute TM
means damage is done in a matter of hours or days. Sub-acute TM means damage
over weeks. The information my Neuro gave me at the time of diagnosis stated
that the rate of paralysis from TM was 50/50 I suffered sub-acute TM at C4-C5
in the spring of 2007. The MRI's and Spinal Tap analysis were pretty
conclusive that I had TM. My leg weakness was very small and passed within a
matter of hours, I was never incapacitated. My bladder difficulties (I could
always pee with effort) passed in the first 6 months. Body and hand weakness
took more than a year. My worst symptom was and continues to be acute pain
(Central Pain Syndrome) from the shoulders down. My suffering led to a
contemplation of suicide. Those of us who fall into the "CPS only" sufferers
are a small minority among TM survivors but as a whole our prognosis for
recovery is poor. The good news is that my only major improvement in pain has
come after my 2nd anniversary.
Mindy the Artisan
On Jul 25, 2009, at 8:58 AM,
[email protected]<mailto:[email protected]> wrote:
*Yes, a small lesion can affect a relatively small part of the body.
Myelitis simply means inflammation of the spinal cord. Transverse,
means
*across*.*
True transverse myelitis results in para or quadra plegia depending on
the level of demyelination.
I have a very small area of demyelination- C6, right side of spinal cord,
size of a small pea- but it results affecting my whole body from my shoulders
down. So you have a small lesion affecting an incredibly large area of the body.
It's a bit like a gun shot wound- through my hand minimal treatment,
through my heart maximum treatment, through my head death!
My two cents
F
