I cant even imagine what you must be going through. I never it was hereditary either. my prayers are with the two of you There is none so amazing as God Peggy Wilson
In a message dated 5/6/2010 9:49:59 A.M. US Mountain Standard Time, [email protected] writes: Janet, As a mother, I can not imagine the pain you are going through. I have not heard of this happening, but have asked my neuro if this was possible-thinking of my 36-year old daughter. He said that he has not heard of that happening and saw no reason why it would happen. Wait til I talk to him again! Just remember, we are ALWAYS here for you and certainly thinking about and praying for you both. I am so very sorry. Is he on any pain meds now? If not, because of no diagnoses until now, they should be able to help him out there. I just don't know what to say - sure would love to give you a huge hug! Please use us. Janice From: _Janet Dunn_ (mailto:[email protected]) Sent: Thursday, May 06, 2010 11:30 AM To: _'Transverse Myelytis'_ (mailto:[email protected]) Subject: [TMIC] My Son Hello all you fellow TM’rs. It is with such a heavy heart, and with tears rolling down my face that I write this. My 15 year old son, who has struggled with his legs for a year now, undiagnosed, has finally been diagnosed. While it is not life threatening, it is TM. I am so sad. I do not know what to think. When I was diagnosed he is the only child of my four that asked if it was hereditary, and I said no. He replied “Good, then I won’t get it.” Now they strongly think he has it. I am so sad. So hurt – probably angry if I allow that emotion. I worry about his future. I know he can be productive, but really – two people in the same family having this beast of a disease? What are the chances? The only common denominator, other than the gene pool, is that he was in the same vehicle accident that I was in 8 years ago. And he was on the same side of the truck that I was on, in the back seat. Why so long to manifest? I don’t know. He has seen me and my trials, so he knows what is ahead. Does anyone know if this beastly condition can be hereditary? He is already talking about not having children in case it is. I am so sad, so discouraged. I know that he is lucky – he can walk with a cane – for that I am thankful. He has not gone to school for a year because of the pain, and the exhaustion. I know that Tracy out there has an eleven year old daughter with it. I am just wondering if anyone else has two family members afflicted with this thing? I simply cannot stop the tears. It is one thing for me, at 47, to face life with this, but to have my son have it too, at 15 is almost too much. Thanks for listening. Janet
