Janet,
I pray for you and your son and for a cure for these diseases soon.
Hang in there..I'm trying to.
Kevin
Janet Dunn wrote:
Hello all you fellow TM’rs.
It is with such a heavy heart, and with tears rolling down my face
that I write this.
My 15 year old son, who has struggled with his legs for a year now,
undiagnosed, has finally been diagnosed. While it is not life
threatening, it is TM.
I am so sad. I do not know what to think. When I was diagnosed he is
the only child of my four that asked if it was hereditary, and I said
no. He replied “Good, then I won’t get it.”
Now they strongly think he has it. I am so sad. So hurt – probably
angry if I allow that emotion. I worry about his future. I know he can
be productive, but really – two people in the same family having this
beast of a disease? What are the chances?
The only common denominator, other than the gene pool, is that he was
in the same vehicle accident that I was in 8 years ago. And he was on
the same side of the truck that I was on, in the back seat. Why so
long to manifest? I don’t know. He has seen me and my trials, so he
knows what is ahead.
Does anyone know if this beastly condition can be hereditary? He is
already talking about not having children in case it is.
I am so sad, so discouraged. I know that he is lucky – he can walk
with a cane – for that I am thankful. He has not gone to school for a
year because of the pain, and the exhaustion. I know that Tracy out
there has an eleven year old daughter with it. I am just wondering if
anyone else has two family members afflicted with this thing?
I simply cannot stop the tears. It is one thing for me, at 47, to face
life with this, but to have my son have it too, at 15 is almost too much.
Thanks for listening.
Janet
