I take 600mg (or 900mg if needed) of Gabapentin [Neurontin] along with one (or two if needed) Hydrocodone – APAP 7.5 – 325 TA [Norco] four times a day (every six hours). When I was first dx'd, my neuro had me on this same dosage, but at only three times a day. I was taking them after breakfast, mid afternoon and at bedtime. But by the time I woke up (which was 8-12 hours later), I hurt so bad and had such bad spasms, I could barely make it to the bathroom, let alone dress myself and go downstairs to start breakfast and take my next dose. I asked my doc if I could take an additional dose - spacing them out 6 hours apart, keeping a more even amount in my system at all times. This has worked pretty well for me for 3 years now. Depending on how strenuous my day has been, I start hurting pretty bad around about an hour before I'm due for my next dose, but on ordinary days, it's not so bad. Betty (in Northern California) In a message dated 12/18/2010 8:17:12 A.M. Pacific Standard Time, [email protected] writes:
my neuro said the backlofen he has me on was for the jerking, my wife made him put me back on it when he took me off of it once,she said i almost kicked her out of bed at night! has me on the high dosage of gabapentin for the nerve pain i am so familar with --- On Sat, 12/18/10, [email protected] <[email protected]> wrote: > From: [email protected] <[email protected]> > Subject: Re: [TMIC] Gabapentin > To: "john snodgrass" <[email protected]> > Cc: "Dalton Garis" <[email protected]>, "transverse myelitis" <[email protected]> > Date: Saturday, December 18, 2010, 11:09 AM > John, > > I'm not sure what your spasms are like - maybe yours are > much worse than > mine, but I've found that if I take sufficient calcium > supplements, I > don't have them. (What I refer to as 'spasms', for > me, is when nerves in > my legs actually cause my legs to jerk around when I'm > still. It makes it > hard to go to sleep.) > > I take maybe 800 mg to 1200 mg/day, depending on how much > calcium foods > I've eaten. If my legs start to spasm, I know I > didn't take enough and > get up and take some. (Calcium is more effective if > taken in smaller > doses - i.e. 400mg - throughout the day, rather than all at > once.) My > calcium levels were good before I was given the 5000 mg > methyl-prednisone > to zap the myelitis, but that zapped the calcium, > too. So this is likely > to be true for all of us who were given steroids to treat > the TM. It > might be worth it to give it a try. > > Sally > > > > > realy bad spasms. > > it helps some. > > i thought this stuff made you sleepy. > > i reckon i am immune. > > > > --- On Sat, 12/18/10, Dalton Garis <[email protected]> > wrote: > > > > > > From: Dalton Garis <[email protected]> > > Subject: Re: [TMIC] Gabapentin > > To: "john snodgrass" <[email protected]> > > Date: Saturday, December 18, 2010, 9:33 AM > > > > > > That is 4x what I am taking! > > > > John, do you have paralysis and spasms? And is that > why the neuro has you > > on such a high dose? > > > > Because I would love to be more medicated if I could. > > > > Dalton > > > > Office: +971-02-607-5070/5297 > > Mobile: +971-50-668-5760-- > > > > > > > > > > > > From: john snodgrass <[email protected]> > > Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) > > To: Kevin Wolfthal <[email protected]> > > Cc: transverse myelitis <[email protected]> > > Subject: Re: [TMIC] Gabapentin > > Resent-From: <[email protected]> > > Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 > > > > i am taking 2400 mg a day. it helps but it doesn't > heal me > > > > --- On Sat, 12/18/10, Kevin Wolfthal <[email protected]> > wrote: > > > >> From: Kevin Wolfthal <[email protected]> > >> Subject: [TMIC] Gabapentin > >> To: [email protected] > >> Date: Saturday, December 18, 2010, 6:12 AM > >> > >> My new doctor visited me today. I asked him again > about > >> Gabapentin and he > >> is going to start me on 100mg 3 times a day. For > those who > >> take this, I would > >> like to hear how you did on it. I realize it's a > low > >> dosage. > >> > >> Thanks, > >> Kevin > >> > >> > > > > > > > > > > > > > > > > > > >
