I also have "idiopathic" TM, which means, I suppose, that it I a pathogen of which the doctors are idiots.
From: lynne myers <[email protected]> Date: Thu, 20 Oct 2011 06:01:24 -0700 (PDT) To: tmic <[email protected]> Subject: Re: [TMIC] shingles vaccine Resent-From: <[email protected]> Resent-Date: Thu, 20 Oct 2011 06:03:41 -0700 > I have gotten shingles three times in the last few years, and to say the least > it is miserable. But on the recommendation of many doctors over the years I > do not get any vaccines. My TM was also idiopathic and the reason I was given > was because they do not know what caused my TM I should not take any risks > that could cause my immune system to go into "overdrive" again. > Lynne > > --- On Thu, 10/20/11, john snodgrass <[email protected]> wrote: >> >> From: john snodgrass <[email protected]> >> Subject: Re: [TMIC] shingles vaccine >> To: "PAMELA S" <[email protected]>, "[email protected]" >> <[email protected]>, "TMC Group" <[email protected]> >> Date: Thursday, October 20, 2011, 6:14 AM >> >> I have a weak mind, I hope all this information doesnt cause me to have >> shingles!! >> >> >> From: PAMELA S <[email protected]> >> To: [email protected]; TMC Group <[email protected]> >> Sent: Thursday, October 20, 2011 1:37 AM >> Subject: RE: [TMIC] shingles vaccine >> >> You know...I'm not going to get this shot. But, shingles is what led to my >> mothers cardiomyapathy and congestive heart failure. >> >> >> Date: Wed, 19 Oct 2011 10:35:34 -0400 >> From: [email protected] >> To: [email protected] >> Subject: [TMIC] shingles vaccine >> >> Our local newspaper has a medical column in the Sunday edition by Dr. Anthony >> Komaroff. >> www.ask doctor k.com <http://k.com> Sunday had a column titled "shingles >> vaccine is a good idea for adults over 60". A healthy 65 year old woman >> asked - what is shingles and should I get the shingles vaccine. The doctor >> explained shingles and the vaccine. Here is a portion of the article. >> >> "Getting the vaccine does not gurantee that you will noy get shingles. But >> it does reduce your chances by 50 percent or more. And it does an even >> better job of reducing your risk of postherpetic neuralgia. >> >> I've had patients worry that the vaccine itself could give them shingles. >> That's because the shingles vaccine is made with a weakened - not dead - form >> of the virus. And a tiny percentage of people do get either a shingles or >> chicken pox - like rash within a month or so of getting the vaccine. >> >> You may wonder if the risks associated with the shingles vaccine, though >> minimal, outweigh its benefits. And if we were only talking about shingles, >> you might be right. It's not pleasant, but most people get through shingles >> just fine. >> >> Postherpetic neuralgia is another story. It can last for months, even years, >> and be debilitating. The shingles vaccine can cut the risk of that happening >> by two thirds. And I'd say that tips the balance in favor getting the >> vaccine. I've voted with my feet. I got the vaccine, because I've seen too >> many of my patients suffer from postherpetic neuralgia. Chronic pain can >> disrupt a person's life" >> >> (end of article) >> >> Jim, >> I think this is a question for a neurologist. Unfortunately, I haven't seen >> mine in three years so I cannot ask for you. I think it would be good of all >> our Tmers who are seeing a neuro to call and ask if the neuro votes yes or no >> for the vaccine and post the results for us. >> >> ------------- >> >> Regarding the flu shot: >> >> I did not have a flu shot proir to my TM that was later lableled idiopathic - >> undetermined cause. I was also asked dozens of times during my >> hospitalization and rehab if I had had the flu shot thus determining that all >> medical personal thought the shot causes TM. Not so. Medical personnel >> asked if we had had the flu shot because they know the flu shot can cause >> various reactions and it is one of the many questions they ask a patient. >> The neuro who diagnosed me with TM asked if I had the flu shot during his >> first observation of me. I saw him for five years post TM and learned that >> he, his wife, and children received the flu shot annually. >> I asked my PCP in September why he didn't ask me if I wanted a flu shot. He >> said, "Do you?" I questioned if he takes one and he said he did not because >> he is not prone to getting the flu and he will not push them on his patients. >> That was the best answer I've received yet. I am not getting the flu shot. >> >> ------- >> Patti - Michigan >> >> >>
