That's mother nature fer ya...... always throwing us stuff. BobbyJim ----- Original Message ----- From: john snodgrass To: susan zieke ; bobberino ; tmic Sent: Friday, October 21, 2011 11:20 AM Subject: Re: [TMIC] shingles vaccine
it is a fearful thought that something that happened to us years ago can cause something to go wrong today ------------------------------------------------------------------------------ From: susan zieke <[email protected]> To: bobberino <[email protected]>; tmic <[email protected]> Sent: Friday, October 21, 2011 11:54 AM Subject: Re: [TMIC] shingles vaccine I found out 2 yrs ago, 9 years post tm onset that Lyme's is the root cause of my tm---99.9% sure. I'd had a bout with Lymes 8 years earlier, felt like I had gthe flu, ached all over, feet hurt to walk...took the doxycyline for 3 weeks, all better, or so I thought til 8 years later. Lymes causes neurological disease, as well as other things, it can attack any part of the body...... sue On Oct 21, 2011, at 9:55 AM, bobberino wrote: When my wife first came down with TM, back in San Francisco, 1997, one of the first questions asked by the doc was had she been out where there are ticks carrying Lyme's disease. No, she hadn't. I've read somewhere that Lyme's is a bif suspect in CNS events. BobbyJim ----- Original Message ----- From: PAMELA S To: [email protected] ; TMC Group Sent: Thursday, October 20, 2011 10:30 PM Subject: RE: [TMIC] shingles vaccine Lynn and Dalton and john and all; My doctor in Michigan told me no immunizations. Here on the west coast, they say, there's no evidence to prove they cause problems. I took the shots 2 years ago...all of them they told me to. And, I've paid. I got sick again. Who knows if there's a connection. I don't want to take it again, but I don't want the flu either. I've seen so many people who had sores that looked like shingles, and burned like shingles, but since the viral swab didn't show shingles, the doctor told them there was no evidence of shingles....I'm not sold on much of anything anymore I guess. -------------------------------------------------------------------------- Date: Thu, 20 Oct 2011 06:01:24 -0700 From: [email protected] Subject: Re: [TMIC] shingles vaccine To: [email protected] I have gotten shingles three times in the last few years, and to say the least it is miserable. But on the recommendation of many doctors over the years I do not get any vaccines. My TM was also idiopathic and the reason I was given was because they do not know what caused my TM I should not take any risks that could cause my immune system to go into "overdrive" again. Lynne --- On Thu, 10/20/11, john snodgrass <[email protected]> wrote: From: john snodgrass <[email protected]> Subject: Re: [TMIC] shingles vaccine To: "PAMELA S" <[email protected]>, "[email protected]" <[email protected]>, "TMC Group" <[email protected]> Date: Thursday, October 20, 2011, 6:14 AM I have a weak mind, I hope all this information doesnt cause me to have shingles!! ------------------------------------------------------------------ From: PAMELA S <[email protected]> To: [email protected]; TMC Group <[email protected]> Sent: Thursday, October 20, 2011 1:37 AM Subject: RE: [TMIC] shingles vaccine You know...I'm not going to get this shot. But, shingles is what led to my mothers cardiomyapathy and congestive heart failure. ------------------------------------------------------------------ Date: Wed, 19 Oct 2011 10:35:34 -0400 From: [email protected] To: [email protected] Subject: [TMIC] shingles vaccine Our local newspaper has a medical column in the Sunday edition by Dr. Anthony Komaroff. www.ask doctor k.com Sunday had a column titled "shingles vaccine is a good idea for adults over 60". A healthy 65 year old woman asked - what is shingles and should I get the shingles vaccine. The doctor explained shingles and the vaccine. Here is a portion of the article. "Getting the vaccine does not gurantee that you will noy get shingles. But it does reduce your chances by 50 percent or more. And it does an even better job of reducing your risk of postherpetic neuralgia. I've had patients worry that the vaccine itself could give them shingles. That's because the shingles vaccine is made with a weakened - not dead - form of the virus. And a tiny percentage of people do get either a shingles or chicken pox - like rash within a month or so of getting the vaccine. You may wonder if the risks associated with the shingles vaccine, though minimal, outweigh its benefits. And if we were only talking about shingles, you might be right. It's not pleasant, but most people get through shingles just fine. Postherpetic neuralgia is another story. It can last for months, even years, and be debilitating. The shingles vaccine can cut the risk of that happening by two thirds. And I'd say that tips the balance in favor getting the vaccine. I've voted with my feet. I got the vaccine, because I've seen too many of my patients suffer from postherpetic neuralgia. Chronic pain can disrupt a person's life" (end of article) Jim, I think this is a question for a neurologist. Unfortunately, I haven't seen mine in three years so I cannot ask for you. I think it would be good of all our Tmers who are seeing a neuro to call and ask if the neuro votes yes or no for the vaccine and post the results for us. ------------- Regarding the flu shot: I did not have a flu shot proir to my TM that was later lableled idiopathic - undetermined cause. I was also asked dozens of times during my hospitalization and rehab if I had had the flu shot thus determining that all medical personal thought the shot causes TM. Not so. Medical personnel asked if we had had the flu shot because they know the flu shot can cause various reactions and it is one of the many questions they ask a patient. The neuro who diagnosed me with TM asked if I had the flu shot during his first observation of me. I saw him for five years post TM and learned that he, his wife, and children received the flu shot annually. I asked my PCP in September why he didn't ask me if I wanted a flu shot. He said, "Do you?" I questioned if he takes one and he said he did not because he is not prone to getting the flu and he will not push them on his patients. That was the best answer I've received yet. I am not getting the flu shot. ------- Patti - Michigan
