Yes, the torso banding is usually control.
Sent from my iPad On Jan 16, 2013, at 9:38 PM, [email protected] wrote: > So is your banding gone? > > In a message dated 1/16/2013 8:41:50 P.M. Eastern Standard Time, > [email protected] writes: > I know that Baclofen helps with my banding. I take 10mg 3 x daily. My neuro > wrote the rx for 4x in case I want to take an extra one. I also take 100mg > Lyrica 3x daily. An RN on this site told me Lyrica also helps with banding > so I guess I'm getting double the help. > > Patti V - Michigan > > > Sent from my iPad > > On Jan 16, 2013, at 2:03 PM, Susan Kleinz <[email protected]> wrote: > >> I was diagnosed with TM two years ago. >> 20 years prior - probable MS >> I think keeping a neurologist is paramount. New things happen every day! >> My family doctor, gynecologist, orthopod had never heard (or believe) in TM! >> So frustrating >> I have constant banding, and would love to know if anyone has had any luck >> with anything. (I do have a brace I wear to handle housework (such as >> vacuuming), and it helps. >> Susan >> On Jan 16, 2013, at 11:57 AM, I Whiddett wrote: >> >>> On the subject of the need for a neurologist, I was discharged by mine >>> after two years on the grounds that there was nothing else to be done to >>> help me. This leaves me in care of my GP practice where there is now no >>> doctor with any knowledge of TM. Their only function for me is to renew my >>> prescription for Amitriptyline, as prescribed by the neurologist 3 1/2 >>> years ago at the onset of TM. I'm really pleased to see the group is still >>> here as I have been wanting to ask if anyone is aware of a drug that helps >>> specifically with "banding" present 24/7 and intensifying in cold/hot >>> weather. I'm unable to go out in the present cold weather and I don't >>> think Amitriptyline helps at all, not even with sleeping any more. I'd >>> appreciate any advice. >>> Iris >>> >>> On Wednesday, January 16, 2013, wrote: >>>> We are talking about the need for a neurologist. I just saw mine >>>> yesterday. For my pain he recommended a pain pump. I'm going to have a >>>> trial pump put in to see if it will work for me. If it does, they will >>>> implant a permanent one in my body, next to the spine with a catheter >>>> leading out to my abdomen where the pump can be refilled periodically. >>>> The medication last about six months before it must be refilled. >>>> >>>> I have so much pain because I have a broken leg that is not healing. It's >>>> been almost 1 & 1/2 years. The pain is intense on top of my TM pain. I'm >>>> taking strong medication to just get by. >>>> >>>> Guess I 'talked' your ears off. Will go for now. >>>> >>>> Judy in Michigan >>>> >>>> In a message dated 1/16/2013 8:16:47 A.M. Eastern Standard Time, >>>> [email protected] writes: >>>> The description you gave sounds familiar. I didn't and could not have gone >>>> back to my banking job. My biggest anxiety in the early days of TM was my >>>> inability to think. It took four months before i could read And longer to >>>> comprehend. I got stuck or stumbled on words when trying to talk and >>>> literally sounded drunk. Had a hard time between left and right. Couldn't >>>> follow directions. Got lost in buildings, because I always turned the >>>> wrong way. Did things backwards. I had to have a note for everything. >>>> >>>> I worked hard to overcome those issues. I sat for hours reading tmic and >>>> the TM forum. Typed with two fingers to write my posts, tried for days to >>>> make a flow-chart, and even had a nine year old come after school two days >>>> a week to play kids games and build items with Legos. >>>> >>>> I felt like the steroids fried my brain. I'm much, much better and thank >>>> God everyday for the improvements. >>>> >>>> Patti V - Michigan >>>> >>>> >>>> Sent from my iPad >>>> >>>> On Jan 15, 2013, at 10:44 PM, Dalton Garis <[email protected]> wrote: >>>> >>>>> Cognitive problems, did you say??? >>>>> >>>>> Please elaborate. I was a high-flying associate professor economist in >>>>> an engineering school when getting TM in 2010. Then I began to >>>>> experience the unthinkable—literally. I could go into class and do the >>>>> entire lecture from my head. But after TM I would get to a point in the >>>>> delivery when it was time to pull out some element from my head and, it >>>>> wouldn't be there! It had always been there, but now I couldn't recall >>>>> it. It was shocking and humiliating to say the least. It finally did me >>>>> in. >>>>> >>>>> Please tell me about these cognitive problems you mentioned. >>>>> >>>>> DG >>>>> >>>>> From: <[email protected]> >>>>> Date: Tuesday, 15 January 2013 9:53 PM >>>>> To: tmic <[email protected]> >>>>> Subject: [TMIC] need for a neuroloist >>>>> Resent-From: <[email protected]> >>>>> Resent-Date: Tue, 15 Jan 2013 18:53:27 -0800 >>>>> >>>>> I had the same neurologist for first five years of TM. I had several >>>>> MRI's and he was satisfied that I didn't have MS (TM left me with >>>>> cognitive problems). I had been on the same medications for two years, >>>>> my primary said he would renew my rx when needed, and I didn't feel the >>>>> need to contnue seeing my neuro (140 mile round trip). >>>>> >>>>> That worked for another two years until my primary moved and his >>>>> replacement refused to write my rx for the Lyrica and Baclofen. She >>>>> referred me to her neuro buddy, but I made an appointment with another >>>>> neuro whom I had heard was "the best" from one of his MS patients. >>>>> >>>>> The new Neuro agreed with my med regime, agreed that there was no need >>>>> for MRI's, and agreed that I didn't need to see him oftener >>>>> than annually unless I had neurological changes. The new neuro also >>>>> understood my frustraton with a primary who would not renew my Lyrica and >>>>> Baclofen rx. >>>>> >>>>> I never went back to that primary and have since seen a Physicians >>>>> Assistant for my regular illnesses. >>>>> >>>>> I didn't think I needed a neurologist. However, I realize that as long >>>>> as I need Baclofen and Lyrica and it is wise to have one available. >>>>> >>>>> Patti V. - Michigan >>>> = > =
