Lyrica has been a wonder drug for me. Dg
Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Pat Voorheis <[email protected]> Date: Wednesday, 16 January 2013 10:11 PM To: "[email protected]" <[email protected]> Cc: "[email protected]" <[email protected]> Subject: Re: [TMIC] need for a neuroloist Resent-From: <[email protected]> Resent-Date: Wed, 16 Jan 2013 19:11:35 -0800 Yes, the torso banding is usually control. Sent from my iPad On Jan 16, 2013, at 9:38 PM, [email protected] wrote: > So is your banding gone? > > In a message dated 1/16/2013 8:41:50 P.M. Eastern Standard Time, > [email protected] writes: >> >> I know that Baclofen helps with my banding. I take 10mg 3 x daily. My neuro >> wrote the rx for 4x in case I want to take an extra one. I also take 100mg >> Lyrica 3x daily. An RN on this site told me Lyrica also helps with banding >> so I guess I'm getting double the help. >> >> >> >> Patti V - Michigan >> >> >> >> Sent from my iPad >> >> >> On Jan 16, 2013, at 2:03 PM, Susan Kleinz <[email protected]> wrote: >> >> >>> >>> I was diagnosed with TM two years ago. >>> 20 years prior - probable MS >>> >>> I think keeping a neurologist is paramount. New things happen every day! >>> My family doctor, gynecologist, orthopod had never heard (or believe) in >>> TM! So frustrating >>> >>> I have constant banding, and would love to know if anyone has had any luck >>> with anything. (I do have a brace I wear to handle housework (such as >>> vacuuming), and it helps. >>> >>> Susan >>> >>> >>> On Jan 16, 2013, at 11:57 AM, I Whiddett wrote: >>> >>> >>>> On the subject of the need for a neurologist, I was discharged by mine >>>> after two years on the grounds that there was nothing else to be done to >>>> help me. This leaves me in care of my GP practice where there is now no >>>> doctor with any knowledge of TM. Their only function for me is to renew >>>> my prescription for Amitriptyline, as prescribed by the neurologist 3 1/2 >>>> years ago at the onset of TM. I'm really pleased to see the group is >>>> still here as I have been wanting to ask if anyone is aware of a drug that >>>> helps specifically with "banding" present 24/7 and intensifying in >>>> cold/hot weather. I'm unable to go out in the present cold weather and I >>>> don't think Amitriptyline helps at all, not even with sleeping any more. >>>> I'd appreciate any advice. >>>> Iris >>>> >>>> On Wednesday, January 16, 2013, wrote: >>>> >>>>> >>>>> >>>>> We are talking about the need for a neurologist. I just saw mine >>>>> yesterday. For my pain he recommended a pain pump. I'm going to have a >>>>> trial pump put in to see if it will work for me. If it does, they will >>>>> implant a permanent one in my body, next to the spine with a catheter >>>>> leading out to my abdomen where the pump can be refilled periodically. >>>>> The medication last about six months before it must be refilled. >>>>> >>>>> >>>>> >>>>> I have so much pain because I have a broken leg that is not healing. >>>>> It's been almost 1 & 1/2 years. The pain is intense on top of my TM >>>>> pain. I'm taking strong medication to just get by. >>>>> >>>>> >>>>> >>>>> Guess I 'talked' your ears off. Will go for now. >>>>> >>>>> >>>>> >>>>> Judy in Michigan >>>>> >>>>> >>>>> >>>>> >>>>> In a message dated 1/16/2013 8:16:47 A.M. Eastern Standard Time, >>>>> [email protected] <javascript:_e({}, 'cvml', >>>>> '[email protected]');> writes: >>>>> >>>>>> >>>>>> The description you gave sounds familiar. I didn't and could not have >>>>>> gone back to my banking job. My biggest anxiety in the early days of TM >>>>>> was my inability to think. It took four months before i could read And >>>>>> longer to comprehend. I got stuck or stumbled on words when trying to >>>>>> talk and literally sounded drunk. Had a hard time between left and >>>>>> right. Couldn't follow directions. Got lost in buildings, because I >>>>>> always turned the wrong way. Did things backwards. I had to have a note >>>>>> for everything. >>>>>> >>>>>> I worked hard to overcome those issues. I sat for hours reading tmic >>>>>> and the TM forum. Typed with two fingers to write my posts, tried for >>>>>> days to make a flow-chart, and even had a nine year old come after >>>>>> school two days a week to play kids games and build items with Legos. >>>>>> >>>>>> >>>>>> >>>>>> I felt like the steroids fried my brain. I'm much, much better and >>>>>> thank God everyday for the improvements. >>>>>> >>>>>> >>>>>> >>>>>> Patti V - Michigan >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> Sent from my iPad >>>>>> >>>>>> >>>>>> On Jan 15, 2013, at 10:44 PM, Dalton Garis <[email protected] >>>>>> <javascript:_e({}, 'cvml', '[email protected]');> > wrote: >>>>>> >>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> Cognitive problems, did you say??? >>>>>>> >>>>>>> >>>>>>> >>>>>>> Please elaborate. I was a high-flying associate professor economist in >>>>>>> an engineering school when getting TM in 2010. Then I began to >>>>>>> experience the unthinkableliterally. I could go into class and do the >>>>>>> entire lecture from my head. But after TM I would get to a point in >>>>>>> the delivery when it was time to pull out some element from my head >>>>>>> and, it wouldn't be there! It had always been there, but now I >>>>>>> couldn't recall it. It was shocking and humiliating to say the least. >>>>>>> It finally did me in. >>>>>>> >>>>>>> >>>>>>> >>>>>>> Please tell me about these cognitive problems you mentioned. >>>>>>> >>>>>>> >>>>>>> >>>>>>> DG >>>>>>> >>>>>>> >>>>>>> >>>>>>> From: <[email protected] <javascript:_e({}, 'cvml', >>>>>>> '[email protected]');> > >>>>>>> Date: Tuesday, 15 January 2013 9:53 PM >>>>>>> To: tmic <[email protected] <javascript:_e({}, 'cvml', >>>>>>> '[email protected]');> > >>>>>>> Subject: [TMIC] need for a neuroloist >>>>>>> Resent-From: <[email protected] <javascript:_e({}, 'cvml', >>>>>>> '[email protected]');> > >>>>>>> Resent-Date: Tue, 15 Jan 2013 18:53:27 -0800 >>>>>>> >>>>>>> >>>>>>> >>>>>>> I had the same neurologist for first five years of TM. I had several >>>>>>> MRI's and he was satisfied that I didn't have MS (TM left me with >>>>>>> cognitive problems). I had been on the same medications for two years, >>>>>>> my primary said he would renew my rx when needed, and I didn't feel the >>>>>>> need to contnue seeing my neuro (140 mile round trip). >>>>>>> >>>>>>> >>>>>>> That worked for another two years until my primary moved and his >>>>>>> replacement refused to write my rx for the Lyrica and Baclofen. She >>>>>>> referred me to her neuro buddy, but I made an appointment with another >>>>>>> neuro whom I had heard was "the best" from one of his MS patients. >>>>>>> >>>>>>> >>>>>>> The new Neuro agreed with my med regime, agreed that there was no need >>>>>>> for MRI's, and agreed that I didn't need to see him oftener than >>>>>>> annually unless I had neurological changes. The new neuro also >>>>>>> understood my frustraton with a primary who would not renew my Lyrica >>>>>>> and Baclofen rx. >>>>>>> >>>>>>> >>>>>>> I never went back to that primary and have since seen a Physicians >>>>>>> Assistant for my regular illnesses. >>>>>>> >>>>>>> >>>>>>> I didn't think I needed a neurologist. However, I realize that as long >>>>>>> as I need Baclofen and Lyrica and it is wise to have one available. >>>>>>> >>>>>>> >>>>>>> Patti V. - Michigan >>>>>> = >>> >> =
