Your memory isn't shot! You remember my story perfectly, I racked my brain for that information and could not come up with anything. I've been with this Dr. for quite a few years now and our relationship couldn't be better. She listens and is attentive and friendly, always greets me with a hug. Love and hugs, Jude In a message dated 1/17/2013 8:01:52 P.M. Eastern Standard Time, [email protected] writes:
It's funny that you say I remember everything. It depends on many things, what and if I can remember anything. Jim thinks my memory is shot, but sometimes I amaze even him. I didn't think I knew when I first read your question, however, I recall something that might be the reason you changed from Genesys to McLaren. You had a doctor in Clio who wrote you a letter saying she would no longer be treating you. You wrote it as "my doctor fired me as a patient". I think she said she could not meet your needs. You ended up getting a patient advocate from Blue Care Network who worked on your behalf to find a doctor to treat you. Does that sound familiar and is that how you came to have the doctor you are with now? That kind of thing happens more than we realize. My mother-in-laws doctor wrote her a letter at the end of 2011 saying he would no longer treat her. He said there should be mutual respect between a doctor and patient and they no longer had that relationship. She didn't always do as he wanted. I know she quit taking meds against his advice. She refused some test, etc. She saw him for twenty some years. I remembered your story and told her to call her insurance company for a patient advocate. That's what she did and it worked. She has a doctor and an advocate. Good hearing from you. Patti - Montrose. Sent from my iPad On Jan 16, 2013, at 11:54 PM, [email protected]_ (mailto:[email protected]) wrote: When I had Genesys nursing I saw Dr Hagenstein too. I wish we had them again but my new Dr. only goes to McClaren. And the bad thing is, she doesn't even go herself. Instead she sends her minions. I can't remember why I switched Dr's can you...you remember everything else. Love and Hugs In a message dated 1/16/2013 8:28:23 P.M. Eastern Standard Time, [email protected]_ (mailto:[email protected]) writes: Hi Judy, I remember that you were in the hyperbaric chamber for the bed sores. I think it was when you were in the hospital, after the nursing home. You got the sores in the nursing home because they didn't change your position often enough. The sores got bad enough that you were hospitalized. Then I think Dave took you home to continue your healing. I hope the pump works for you. My the hyperbaric chamber would help in the bone healing. Can you tell me the name of your Neurologist? I am now seeing Dr Hagenstein. He is in Genesys Hospital, first floor. I see him again in February. Patti Voorheis - Montrose Sent from my iPad On Jan 16, 2013, at 12:34 PM, [email protected]_ (mailto:[email protected]) wrote: I remember those days Patti, when you first came to TMIC. You asked a lot of great questions which spurned good conversation. I don't want you to have TM, but I'm thankful to have met you. We have become good friends because of it. In a message dated 1/16/2013 8:16:47 A.M. Eastern Standard Time, [email protected]_ (mailto:[email protected]) writes: The description you gave sounds familiar. I didn't and could not have gone back to my banking job. My biggest anxiety in the early days of TM was my inability to think. It took four months before i could read And longer to comprehend. I got stuck or stumbled on words when trying to talk and literally sounded drunk. Had a hard time between left and right. Couldn't follow directions. Got lost in buildings, because I always turned the wrong way. Did things backwards. I had to have a note for everything. I worked hard to overcome those issues. I sat for hours reading tmic and the TM forum. Typed with two fingers to write my posts, tried for days to make a flow-chart, and even had a nine year old come after school two days a week to play kids games and build items with Legos. I felt like the steroids fried my brain. I'm much, much better and thank God everyday for the improvements. Patti V - Michigan Sent from my iPad On Jan 15, 2013, at 10:44 PM, Dalton Garis <[email protected]_ (mailto:[email protected]) > wrote: Cognitive problems, did you say??? Please elaborate. I was a high-flying associate professor economist in an engineering school when getting TM in 2010. Then I began to experience the unthinkable—literally. I could go into class and do the entire lecture from my head. But after TM I would get to a point in the delivery when it was time to pull out some element from my head and, it wouldn't be there! It had always been there, but now I couldn't recall it. It was shocking and humiliating to say the least. It finally did me in. Please tell me about these cognitive problems you mentioned. DG From: <[email protected]_ (mailto:[email protected]) > Date: Tuesday, 15 January 2013 9:53 PM To: tmic <[email protected]_ (mailto:[email protected]) > Subject: [TMIC] need for a neuroloist Resent-From: <[email protected]_ (mailto:[email protected]) > Resent-Date: Tue, 15 Jan 2013 18:53:27 -0800 I had the same neurologist for first five years of TM. I had several MRI's and he was satisfied that I didn't have MS (TM left me with cognitive problems). I had been on the same medications for two years, my primary said he would renew my rx when needed, and I didn't feel the need to contnue seeing my neuro (140 mile round trip). That worked for another two years until my primary moved and his replacement refused to write my rx for the Lyrica and Baclofen. She referred me to her neuro buddy, but I made an appointment with another neuro whom I had heard was "the best" from one of his MS patients. The new Neuro agreed with my med regime, agreed that there was no need for MRI's, and agreed that I didn't need to see him oftener than annually unless I had neurological changes. The new neuro also understood my frustraton with a primary who would not renew my Lyrica and Baclofen rx. I never went back to that primary and have since seen a Physicians Assistant for my regular illnesses. I didn't think I needed a neurologist. However, I realize that as long as I need Baclofen and Lyrica and it is wise to have one available. Patti V. - Michigan = = =
