Hi Janet, It's been a little bit now since I've heard from you. My Dr. is only now sending me to a Pain Management Dr. I am going to have the Matrix pain pump put in. First I have to go through a trial period and if it works I will have the surgery and have installed permanently. I'll let you know when that happens. Your friend, Jude In a message dated 1/17/2013 11:49:46 P.M. Eastern Standard Time, [email protected] writes:
I have not been to my neuro in at least 4 years. My family doctor and Pain Management doctors take care of me far better than my neuro. Once I was out of the hospital for a year or two we quit going to him because he just did not do anything except ask how I was doing and then that was it. Pain Management doc’s do sooooo much more! Janice From: [email protected]_ (mailto:[email protected]) Sent: Thursday, January 17, 2013 5:38 PM To: [email protected]_ (mailto:[email protected]) Cc: [email protected]_ (mailto:[email protected]) Subject: Re: [TMIC] neurologist Rick, Sorry, I thought that message was from Rob. I am going to try the trial before the permanent pump. Living with a broken leg is what is causing the pain. I asked the Dr. about electrical stimulation etc. and she said to tackle one thing first. I'm supposed to give them a week to call and set up the trial and if I don't hear from them in a week, I'm supposed to call the Dr. back. I think it's kinda' lame, but that's the way it's supposed to work. I'm updating my address book on AOL and wonder if I can have your full name, address and phone number. You never know, I might want to send you a card or call you some time. I love you too, Jude in Michigan In a message dated 1/17/2013 4:36:25 P.M. Eastern Standard Time, [email protected] writes: Jude, I allowing with you despite many trials of pain meds have realized that I'm not satisifed with them, I personally suggest that you try the trial pump before you undergo the actualy procedure. I wish that we had neuros down here willing to do trials. , Only you know how bad it hurts, you need help so I would atleast give ot a try. I care for you and I hate to know how bad you feel. Please help yourself no matter what it takes. I love you and I really care. Rick From: "[email protected]" <[email protected]> To: [email protected] Cc: [email protected] Sent: Thursday, January 17, 2013 11:49 AM Subject: Re: [TMIC] neurologist Hi Rob, I am waiting for a phone call from my neurologist, who is setting up a trial for the pain pump, but he didn't mention anything about doing a trial with a hypodermic. Do you think that I ought to call him? Judy in Michigan In a message dated 1/17/2013 11:21:50 A.M. Eastern Standard Time, [email protected] writes: I disagree with all of you who are saying that you have either stopped going to a neurologist or see one very infrequently. I saw Dr Kerr at John Hopkins for the first 10 years after coming down with TM. I go to my neurologist at least once per year to insure that my meds are the best they can be. New Medications and procedures happen all of the time....by seeing a neuro I assure myself that I am getting the best treatment possible. Just last week I changed to a new neurologist, Douglas Holland in West Long Branch NJ. Not only did he prescribe medical marijuana for me he also set up a test to inject baclofin directly into my spine and see over a period of 4 hours if it makes a noticeable improvement. If it does we may consider the baclofin pump....if it does not we will explore other options to help me better cope with my pain and discomfort. I head up the New Jersey TM support group. The main benefit of a support group is comparing doctors and medicines that others are seeing or taking and perhaps get some new ideas regarding treatment. At our last 2 meetings we had as a guest speaker the head of physical therapy who gave us many ideas of simple things we could do in our own homes to exercise as well as hospital treatments that could prove beneficial. I have had TM for over 15 years....and I have fought this condition every single day. I cannot walk very well....but I have learned that I can swim pretty good. I now swim one mile a day......and even if this is doing nothing for my TM it is at least giving me a great cardio workout. Finally I purchased a Golden Retriever......this 60lb dog forces me to walk at lease 1 hour every day. Start living or start dying! All the best! Rob in NJ -----Original Message----- From: rn11974 <[email protected]> To: Tracey L. Black <[email protected]> Cc: tmic <[email protected]> Sent: Thu, Jan 17, 2013 10:55 am Subject: Re: [TMIC] neurologist My neurologist saw me less than 24 hrs after my tm attack; he quickly diagnosed me, gave me IV steroids for 7 days, saw me every day in rehab. I saw him every 3 months for over a year. Then I spoke with PCP about baclofen, and never went back. He was charging $300 per office visit to my insurance, plus my $15 co-pay. From: Tracey L. Black <[email protected]_ (mailto:[email protected]) > To: "[email protected]_ (mailto:[email protected]) " <[email protected]_ (mailto:[email protected]) >; tmic <[email protected]_ (mailto:[email protected]) > Sent: Thursday, January 17, 2013 10:20 AM Subject: RE: [TMIC] neurologist I agree Cheryl. My daughter, Ashlee, hasn’t been to a neuro since she was at KKI in Baltimore in 2006 and even then, they didn’t do any testing or anything on her. He never really even checked in on her while she was there for the 8 week program. Her PCP orders her Oxybutnin and if she gets a sinus infection or something along those lines, she goes to the PCP or Ready Care. Tracey L. Black Certified Insurance Service Representative Hockley & O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone: 717-334-6741, x 29 Fax: 717-334-3414 Office hours: 8:00 a.m. - 5:00 p.m. My hours: 9:00 a.m. - 5:00 p.m. (http://on.fb.me/hnofb) P Please consider the environment before printing Insurance coverage cannot be bound or altered without confirmation from a licensed agent. If you do not hear from us within 1 business day, please re-contact us in case your information has not be retained. This message contains confidential information for use only by its intended recipients and may contain information that is proprietary, privileged, and protected under the law (including Gramm-Leach-Bliley and HIPAA/HITECH). If you are not the named addressee, you are hereby notified that any use of, distribution of, copying, or reliance upon the contents of this e-mail is strictly prohibited and may result in criminal or civil penalties. Please notify the sender immediately by e-mail if you have received this by mistake and delete this e-mail from your system. Thank you. From: [email protected]_ (mailto:[email protected]) [_mailto:[email protected]?_ (mailto:[email protected]?) ] Sent: Thursday, January 17, 2013 10:07 AM To: tmic Subject: [TMIC] neurologist I haven't seen a neurologist in over 15 years. What's the point? My PCP orders my baclofen. Cheryl
