Great updates Robert I have enjoyed reading them . Margaret from TM Scotland Support Group UK
Sent from Margaret's iPad On 23 Jul 2013, at 17:24, "Robert Pall" <[email protected]> wrote: > This is my third Journal report since receiving my Baclofin Pump on 6/28/13. > After the first couple of weeks where I did have some post operation problems > (leaking spinal fluid) everything has gotten better and better. I am > currently weaning my self off of Lyrica where I was taking 450 mg per day I > am now down to 75 mg and will start 50 mg tomorrow and after 10 days be off > the drug entirely. I have had my6 pump adjusted twice since the surgery and I > am now in effect taking twice the dosage that was being used when the pump > was initially implanted. My scars are slowly going away ( I had my cuts > closed with glue instead of actual stitches. I am back to swimming one mile > of laps per day and walking approximately one mile per day with my pulling 20 > month old 75 lb Golden Retriever. I am walking almost normally with no > tightening or extra banding due to walking or exercise. In fact the only > thing I cannot do is run...and the great thing is that when walking I believe > I look "normal". After 4 weeks I can honestly say that I am feeling the best > I have in 15 years. I consider the decision to have the pump put in me the > most significant thing I have ever done to treat6 my TM. closing I could not > be happier than I am now. > For the people living in the Tri-State arera I would highly recommend my > current Neurologist "Doctor Neil Holland" who not only told me about the > benefits of the pump ...he also stated that the pump is totally underutilized > when treating conditions such as TM and MS. I strongly urge all TM'rs to at > least get the trial to see if they are good candidates for the procedure. The > trial takes about 3 hours and is done in the hospital (in my case by Dr. > Holland). After only a few minutes after receiving the trial injection I was > amazed by the difference in my banding and spasticity. I finally feel I have > become proactive with my condition instead of simply looking for and using > new drugs to slightly alleviate the effects of TM.I hope to have Dr Holland > speak at our next TM support group meeting which should be at the Centre > State Hospital in Freehold NJ. > > All the best! > Rob In NJ
