Re: [TMIC] Baclofin Pump

[Janice Nichols]

I can’t imagine how thrilled you must be to be actually feeling so much 
better!!!    Great!
Janice

York
USA

From: margaret shearer <margaretshea...@hotmail.com>
Date: Tue, 23 Jul 2013 17:33:11 +0100
To: Robert Pall <robthe...@aol.com>
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Subject: Re: [TMIC] Baclofin Pump
Resent-From: <tmic-list@eskimo.com>
Resent-Date: Tue, 23 Jul 2013 09:33:14 -0700 (PDT)


  Great updates Robert I have enjoyed reading them .
  Margaret from TM Scotland Support Group UK 

  Sent from Margaret's iPad

  On 23 Jul 2013, at 17:24, "Robert Pall" <robthe...@aol.com> wrote:


    This is my third Journal report since receiving my Baclofin Pump on 
6/28/13. After the first couple of weeks where I did have some post operation 
problems (leaking spinal fluid) everything has gotten better and better. I am 
currently weaning my self off of Lyrica where I was taking 450 mg per day I am 
now down to 75 mg and will start 50 mg tomorrow and after 10 days be off the 
drug entirely. I have had my6 pump adjusted twice since the surgery and I am 
now in effect taking twice the dosage that was being used when the pump was 
initially implanted. My scars are slowly going away ( I had my cuts closed with 
glue instead of actual stitches. I am back to swimming one mile of laps per day 
and walking approximately one mile per day with my pulling 20 month old 75 lb 
Golden Retriever. I am walking almost normally with no tightening or extra 
banding due to walking or exercise. In fact the only thing I cannot do is 
run...and the great thing is that when walking I believe I look "normal". After 
4 weeks I can honestly say that I am feeling the best I have in 15 years. I 
consider the decision to have the pump put in me the  most significant thing I 
have ever done to treat6 my TM. closing I could not be happier than I am now. 
        For the people living in the Tri-State arera I would highly recommend 
my current Neurologist "Doctor Neil Holland" who not only told me about the 
benefits of the pump ...he also stated that the pump is totally underutilized 
when treating conditions such as TM and MS. I strongly urge all TM'rs to at 
least get the trial to see if they are good candidates for the procedure. The 
trial takes about 3 hours and is done in the hospital (in my case by Dr. 
Holland). After only a few minutes after receiving the trial injection I was 
amazed by the difference in my banding and spasticity. I finally feel I have 
become proactive with my condition instead of simply looking for and using new 
drugs to slightly alleviate the effects of TM.I hope to have Dr Holland speak 
at our next TM support group meeting which should be at the Centre State 
Hospital in Freehold NJ.

    All the best!
    Rob In NJ