Re: [TMIC] Baclofin Pump

[Dalton Garis]

That's extraordinary!

How wonderful!

Dalton

Dalton H. Garis
Flushing, New York
USA

From:  margaret shearer <margaretshea...@hotmail.com>
Date:  Tue, 23 Jul 2013 17:33:11 +0100
To:  Robert Pall <robthe...@aol.com>
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Subject:  Re: [TMIC] Baclofin Pump
Resent-From:  <tmic-list@eskimo.com>
Resent-Date:  Tue, 23 Jul 2013 09:33:14 -0700 (PDT)

> Great updates Robert I have enjoyed reading them .
> Margaret from TM Scotland Support Group UK
> 
> Sent from Margaret's iPad
> 
> On 23 Jul 2013, at 17:24, "Robert Pall" <robthe...@aol.com> wrote:
> 
>> This is my third Journal report since receiving my Baclofin Pump on 6/28/13.
>> After the first couple of weeks where I did have some post operation problems
>> (leaking spinal fluid) everything has gotten better and better. I am
>> currently weaning my self off of Lyrica where I was taking 450 mg per day I
>> am now down to 75 mg and will start 50 mg tomorrow and after 10 days be off
>> the drug entirely. I have had my6 pump adjusted twice since the surgery and I
>> am now in effect taking twice the dosage that was being used when the pump
>> was initially implanted. My scars are slowly going away ( I had my cuts
>> closed with glue instead of actual stitches. I am back to swimming one mile
>> of laps per day and walking approximately one mile per day with my pulling 20
>> month old 75 lb Golden Retriever. I am walking almost normally with no
>> tightening or extra banding due to walking or exercise. In fact the only
>> thing I cannot do is run...and the great thing is that when walking I believe
>> I look "normal". After 4 weeks I can honestly say that I am feeling the best
>> I have in 15 years. I consider the decision to have the pump put in me the
>> most significant thing I have ever done to treat6 my TM. closing I could not
>> be happier than I am now.
>>     For the people living in the Tri-State arera I would highly recommend my
>> current Neurologist "Doctor Neil Holland" who not only told me about the
>> benefits of the pump ...he also stated that the pump is totally underutilized
>> when treating conditions such as TM and MS. I strongly urge all TM'rs to at
>> least get the trial to see if they are good candidates for the procedure. The
>> trial takes about 3 hours and is done in the hospital (in my case by Dr.
>> Holland). After only a few minutes after receiving the trial injection I was
>> amazed by the difference in my banding and spasticity. I finally feel I have
>> become proactive with my condition instead of simply looking for and using
>> new drugs to slightly alleviate the effects of TM.I hope to have Dr Holland
>> speak at our next TM support group meeting which should be at the Centre
>> State Hospital in Freehold NJ.
>> 
>> All the best!
>> Rob In NJ