Hi All, Sorry for being out of the group for a long time. I was/am busy with many things...any way...I saw the article in Poddu by Prashanthi and I congratulate her again to spread the message and the work being done by MAD.
I request your help regarding this patient being trated by one of my friend Dr.Rajesh at Narayana Nethralaya, bangalore...It is a genuine case and anyone from Bangalore can contact Dr.Rajesh regarding the case. I am contributing Rs.4000 for this case and this time I don't want to miss the opportunity to help someone's life. He has a very rare and fatal disease if not treated...if he canget the required medicines his life will be saved...so please go through the message and decide... Read the following message: I need your help to help this needy patient i am currently treating Please go through this important mail about Mr Murugesh ,a labourer in a brick kiln earning less than 3000 rupees a month. He lives with his family of four and is the sole bread winner of his family. He has been diagnosed to have This life-threatening illness called Wegener's Granulomatosis which is an aggressive form of ANCA-associated systemic vasculitis. It is invariably fatal if left untreated. Median survival if not treated with Cyclophosphamide is 5.5-12 months due to pulmonary and renal failure. Already he has had a serious life threatening lung event in form of an Empyema Thoracis for which he had needed intensive care at Narayana hrudayalaya. He also had bilateral anterior necrotizing scleritis and posterior scleritis with a Mckluskey score of 15 which is serious enough to threaten vision. His diagnosis was clinched by careful examination and appropriate investigations ordered by doctors at Narayana nethralaya and Narayana Hrudayalaya The first challenge was successfully conquered by suspecting and doing the C ANCA test that was 3+ positive confirming this difficult diagnosis based on an ophthalmic examination by me. Now the major challenge is to treat him which would cost him about 100,000 rupees over 1-2 years A free CT Guided Biopsy of the lacrimal gland was arranged at the behest of Our doctors. Now the patient is on oral cyclophosphamide and cotrimoxazole with tapering schedule of oral steroids. He needs to be on regular cyclophosphamide and monitoring of its side effects At the same time he needs regular follow up with the physician at Narayana hrudayalaya and Narayana Nethralaya . I have arranged to take care him as free academic case at our hospital He now is having another acute urinary obstruction crisis precipitated by urethral stricture and has been admitted in a govt hospital in salem . He is hesitating to come here at narayana because he is worried about the expenses. I have been trying to repeatedly assure him that i will get him a waiver The staff at the Govt Hospital will be clueless about how to manage him as the expertise to treat him is available only in Narayana health city I need your help in A Generating a fund from donations by a group of your friends in various fields OR B. Putting this case up in the news paper for some body in the public to adopt his treatment expenses which are as follows I am putting up an years expenses for this patient Cost of oral Cyclophosphamide Rs 50 X 52 weeks = 2700 ( approx) Cost of oral and topical steroids Rs 100X 6 weeks = Rs 600 Cost of periodic monitoring of blood counts and liver and renal function parameters = Rs 15000 Cost of miscellaneous medicines and special expenses if need arises = Rs 5000 Cost of travel to hospital for the patient and one attendant = Rs 300 X 20 visits/year = 6000 Total cost comes up to Rs 25000/year for this patient Another 25000 -50000 might be required for emergencies Expected outcome 60-88% chance of achieving full recovery and remission of the disease Prevention of end stage renal disease and pulmonary failure and above all saving his eyes from sure destruction and 100 percent blindness The drugs can be stopped when there is 6-8 months of inflammation free period or if side effects cause severe complications regards -- Dr.Rajesh Babu MD Dept of Uveitis & Ocular Immunology Lead Medical informatics & EMR Narayana Nethralaya , Narayana Health City Hosur road, Anekal Taluk, Bangalore - 560 099, INDIA Ph : +91-80-66660655-0657 Mobile +91 9844559214
