Re: [TMIC] question
Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so figure if I can put it off for awhile, I will. As much as I walk, I'll probably never wear it out. I was actually on schedule for a knee replacement last year when I asked to see a physical therapist in order to best improve the strength in my body so I could get through the rehab in the best way possible. The therapist told me that the knee is no walk in the park. It is extremely painful, after the surgery, but especially the rehab. I don't understand what you mean about rehab differently. From what I understand, and I really didn't go into it all the way, you have exercises and walking. He told me that a very painful part is straightening the knee, as it will want to be bent to be in less pain, but not good since you develop scar tissue very quickly and if not careful, you will not be able to straighten it fully. I had a couple of visits and from the exercises that I was doing for my legs I no longer had the pain that I was having. At the time I also was having a lot of pain with my shoulder over for a year and a half at that point, so knew it would be extra painful on the shoulder. I use canadian crutches or a rolling walker to get around, and the orthopedic surgeon says that I walk on my shoulders, lol. I had rotator cuff surgery and a bone spur removed two months ago and am no longer in pain there, so when I really need the knee, I'll hopefully be in better shape. Good luck Rob, just thought I'd share my small bit of knowledge. Hugs, Barbara A in Auburn CA -Original Message- From: Robert Pall rp...@neillsupply.com To: tmic-list tmic-list@eskimo.com Sent: Tue, Dec 7, 2010 8:43 am Subject: [TMIC] question Have any of you gotten replacement hips or knees…..I think I may need a new knee and I was wondering….. if you have no feeling (other than pain) how do you rehab…surely you cannot do it the normal rehab way? Thanks Rob in New Jersey
Re: [TMIC] question
May I break in with a question of my own? I am having a great deal of trouble with cramping and what I just learned is called hypertonis, which is too much muscle tone and willingness to contract, and the feedback loop to the brain that would tell the muscle not to contract being damaged by the TM in my brainstem, where the lesion was actually found. I can't continue to function with this hypertonis, which feels as if I am being electrocuted from the base of my spine, all the way down my legs and arms, so that it hurts a lot to move at all, or even talk. Only by being completely still and relaxed does this pain subside. Have any of you had experience with this? And if so, can you recommend a medication which might be useful? Thanks, and hope to hear back soon, Dalton On Dec 8, 2010, at 12:03 PM, Barbara Alma wrote: Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so figure if I can put it off for awhile, I will. As much as I walk, I'll probably never wear it out. I was actually on schedule for a knee replacement last year when I asked to see a physical therapist in order to best improve the strength in my body so I could get through the rehab in the best way possible. The therapist told me that the knee is no walk in the park. It is extremely painful, after the surgery, but especially the rehab. I don't understand what you mean about rehab differently. From what I understand, and I really didn't go into it all the way, you have exercises and walking. He told me that a very painful part is straightening the knee, as it will want to be bent to be in less pain, but not good since you develop scar tissue very quickly and if not careful, you will not be able to straighten it fully. I had a couple of visits and from the exercises that I was doing for my legs I no longer had the pain that I was having. At the time I also was having a lot of pain with my shoulder over for a year and a half at that point, so knew it would be extra painful on the shoulder. I use canadian crutches or a rolling walker to get around, and the orthopedic surgeon says that I walk on my shoulders, lol. I had rotator cuff surgery and a bone spur removed two months ago and am no longer in pain there, so when I really need the knee, I'll hopefully be in better shape. Good luck Rob, just thought I'd share my small bit of knowledge. Hugs, Barbara A in Auburn CA -Original Message- From: Robert Pall rp...@neillsupply.com To: tmic-list tmic-list@eskimo.com Sent: Tue, Dec 7, 2010 8:43 am Subject: [TMIC] question Have any of you gotten replacement hips or knees…..I think I may need a new knee and I was wondering….. if you have no feeling (other than pain) how do you rehab…surely you cannot do it the normal rehab way? Thanks Rob in New Jersey
Re: [TMIC] question
*Hey Dalton, Shot in the dark, but my doctors put me on Tegratol. Now it's original use is for seizures, but one of the side effects is it does sometimes stop the electrical, lightning bolt sensations. I was on it for a while, but started having seizures; my body couldn't metabolize the Tegratol correctly so it caused me to have seizures. It is a rare occurrence, but I seem to get them all...lol. But while I was taking it, it did help a lot with the 'electrical' impulses and shocks going through me. Might ask your doctor about it... Namaste, Bernie in Texas* On 12/8/2010 2:59 AM, Dalton Garis wrote: May I break in with a question of my own? I am having a great deal of trouble with cramping and what I just learned is called *hypertonis*, which is too much muscle tone and willingness to contract, and the feedback loop to the brain that would tell the muscle not to contract being damaged by the TM in my brainstem, where the lesion was actually found. I can't continue to function with this hypertonis, which feels as if I am being electrocuted from the base of my spine, all the way down my legs and arms, so that it hurts a lot to move at all, or even talk. Only by being completely still and relaxed does this pain subside. Have any of you had experience with this? And if so, can you recommend a medication which might be useful? Thanks, and hope to hear back soon, Dalton On Dec 8, 2010, at 12:03 PM, Barbara Alma wrote: Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so figure if I can put it off for awhile, I will. As much as I walk, I'll probably never wear it out. I was actually on schedule for a knee replacement last year when I asked to see a physical therapist in order to best improve the strength in my body so I could get through the rehab in the best way possible. The therapist told me that the knee is no walk in the park. It is extremely painful, after the surgery, but especially the rehab. I don't understand what you mean about rehab differently. From what I understand, and I really didn't go into it all the way, you have exercises and walking. He told me that a very painful part is straightening the knee, as it will want to be bent to be in less pain, but not good since you develop scar tissue very quickly and if not careful, you will not be able to straighten it fully. I had a couple of visits and from the exercises that I was doing for my legs I no longer had the pain that I was having. At the time I also was having a lot of pain with my shoulder over for a year and a half at that point, so knew it would be extra painful on the shoulder. I use canadian crutches or a rolling walker to get around, and the orthopedic surgeon says that I walk on my shoulders, lol. I had rotator cuff surgery and a bone spur removed two months ago and am no longer in pain there, so when I /really/ need the knee, I'll hopefully be in better shape. Good luck Rob, just thought I'd share my small bit of knowledge. Hugs, Barbara A in Auburn CA -Original Message- From: Robert Pall rp...@neillsupply.com mailto:rp...@neillsupply.com To: tmic-list tmic-list@eskimo.com mailto:tmic-list@eskimo.com Sent: Tue, Dec 7, 2010 8:43 am Subject: [TMIC] question Have any of you gotten replacement hips or knees…..I think I may need a new knee and I was wondering….. if you have no feeling (other than pain) how do you rehab…surely you cannot do it the normal rehab way? Thanks Rob in New Jersey No virus found in this message. Checked by AVG - www.avg.com http://www.avg.com Version: 10.0.1170 / Virus Database: 426/3303 - Release Date: 12/07/10
Re: [TMIC] question
I also take Tegretol, it helps me the most with my banding. Was suprised with the amount of relief I got within a short time after starting it. Lynne --- On Wed, 12/8/10, Bernie bpe...@austin.rr.com wrote: From: Bernie bpe...@austin.rr.com Subject: Re: [TMIC] question To: Dalton Garis malugss...@gmail.com, TMIC tmic-list@eskimo.com Date: Wednesday, December 8, 2010, 4:30 AM Hey Dalton, Shot in the dark, but my doctors put me on Tegratol. Now it's original use is for seizures, but one of the side effects is it does sometimes stop the electrical, lightning bolt sensations. I was on it for a while, but started having seizures; my body couldn't metabolize the Tegratol correctly so it caused me to have seizures. It is a rare occurrence, but I seem to get them all...lol. But while I was taking it, it did help a lot with the 'electrical' impulses and shocks going through me. Might ask your doctor about it... Namaste, Bernie in Texas On 12/8/2010 2:59 AM, Dalton Garis wrote: May I break in with a question of my own? I am having a great deal of trouble with cramping and what I just learned is called hypertonis, which is too much muscle tone and willingness to contract, and the feedback loop to the brain that would tell the muscle not to contract being damaged by the TM in my brainstem, where the lesion was actually found. I can't continue to function with this hypertonis, which feels as if I am being electrocuted from the base of my spine, all the way down my legs and arms, so that it hurts a lot to move at all, or even talk. Only by being completely still and relaxed does this pain subside. Have any of you had experience with this? And if so, can you recommend a medication which might be useful? Thanks, and hope to hear back soon, Dalton On Dec 8, 2010, at 12:03 PM, Barbara Alma wrote: Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so figure if I can put it off for awhile, I will. As much as I walk, I'll probably never wear it out. I was actually on schedule for a knee replacement last year when I asked to see a physical therapist in order to best improve the strength in my body so I could get through the rehab in the best way possible. The therapist told me that the knee is no walk in the park. It is extremely painful, after the surgery, but especially the rehab. I don't understand what you mean about rehab differently. From what I understand, and I really didn't go into it all the way, you have exercises and walking. He told me that a very painful part is straightening the knee, as it will want to be bent to be in less pain, but not good since you develop scar tissue very quickly and if not careful, you will not be able to straighten it fully. I had a couple of visits and from the exercises that I was doing for my legs I no longer had the pain that I was having. At the time I also was having a lot of pain with my shoulder over for a year and a half at that point, so knew it would be extra painful on the shoulder. I use canadian crutches or a rolling walker to get around, and the orthopedic surgeon says that I walk on my shoulders, lol. I had rotator cuff surgery and a bone spur removed two months ago and am no longer in pain there, so when I really need the knee, I'll hopefully be in better shape. Good luck Rob, just thought I'd share my small bit of knowledge. Hugs, Barbara A in Auburn CA -Original Message- From: Robert Pall rp...@neillsupply.com To: tmic-list tmic-list@eskimo.com Sent: Tue, Dec 7, 2010 8:43 am Subject: [TMIC] question Have any of you gotten replacement hips or knees…..I think I may need a new knee and I was wondering….. if you have no feeling (other than pain) how do you rehab…surely you cannot do it the normal rehab way? Thanks Rob in New Jersey No virus found in this message. Checked by AVG - www.avg.com Version: 10.0.1170 / Virus Database: 426/3303 - Release Date: 12/07/10
RE: [TMIC] question
Barbara my husband had double knee replacement in 2006. Whatever pain he had must not have been too bad as he didn’t complain. I think the one thing that made it easier for him is doing your pre-surgery exercised to strengthen leg muscles. A month before surgery he a given a 3-ring binder with all the excises listed. He did them faithfully all day so his body was ready for the demand surgery would put on his legs. In fact, he only went to P.T. for about 3-4 weeks, as they said they couldn’t do any more for him and Medicare wouldn’t pay for it any more. He was driving again in less than 4 weeks. Of course, he didn’t have any other health problems, which might make a big difference. Good luck with whatever you decide to do. Patti - Wisconsin From: Barbara Alma [mailto:balmat...@aol.com] Sent: Wednesday, December 08, 2010 2:04 AM To: rp...@neillsupply.com; tmic-list@eskimo.com Subject: Re: [TMIC] question Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so figure if I can put it off for awhile, I will. As much as I walk, I'll probably never wear it out. I was actually on schedule for a knee replacement last year when I asked to see a physical therapist in order to best improve the strength in my body so I could get through the rehab in the best way possible. The therapist told me that the knee is no walk in the park. It is extremely painful, after the surgery, but especially the rehab. I don't understand what you mean about rehab differently. From what I understand, and I really didn't go into it all the way, you have exercises and walking. He told me that a very painful part is straightening the knee, as it will want to be bent to be in less pain, but not good since you develop scar tissue very quickly and if not careful, you will not be able to straighten it fully. I had a couple of visits and from the exercises that I was doing for my legs I no longer had the pain that I was having. At the time I also was having a lot of pain with my shoulder over for a year and a half at that point, so knew it would be extra painful on the shoulder. I use canadian crutches or a rolling walker to get around, and the orthopedic surgeon says that I walk on my shoulders, lol. I had rotator cuff surgery and a bone spur removed two months ago and am no longer in pain there, so when I really need the knee, I'll hopefully be in better shape. Good luck Rob, just thought I'd share my small bit of knowledge. Hugs, Barbara A in Auburn CA -Original Message- From: Robert Pall rp...@neillsupply.com To: tmic-list tmic-list@eskimo.com Sent: Tue, Dec 7, 2010 8:43 am Subject: [TMIC] question Have any of you gotten replacement hips or knees…..I think I may need a new knee and I was wondering….. if you have no feeling (other than pain) how do you rehab…surely you cannot do it the normal rehab way? Thanks Rob in New Jersey
[TMIC] fatigue
Today I had a routine doctor's appt.@ 8:30. My sister and brother-in-law picked me up at 8. Rode 20 min. in car ;got in right away to office. Answered questions,vitals checked,etc. Waited a few min. for doc. He came in discussed my issues,showed him my right heel which split open a few days ago.Got scripts printed out for all my meds,a walker,and a shower chair. Had 3 vials of blood drawn,peed in a cup After that went to pharmacy for silver sulfadiazine cream for my foot.Finally got home at 10:15. Everything is sore and achy and the banding is super tight. I am exhausted and will suffer for days from 2 hrs and 15 minutes of walking and sitting. I seldom let tm get to me,but today is a bad day.How I hate this disease! Cheryl in Easthampton,MA
Re: [TMIC] question
Well, friends; Since I last wrote, I am unable to walk very far or even stand up for very long. Probably just temporary, but the pain in my limbs and torso is really intense. Gotta see the neuro. I can¹t even imagine how I will get to work tomorrow, or what I will do once there. I will ask neuro about Tegritol, but I already get convulsions and cramps, so I don¹t know what he will think. But I gotta get a handle on this pain or its game over. Thanks, all. Dalton From: Bernie bpe...@austin.rr.com Date: Wed, 08 Dec 2010 03:30:19 -0600 To: Dalton Garis malugss...@gmail.com, TMIC tmic-list@eskimo.com Subject: Re: [TMIC] question Hey Dalton, Shot in the dark, but my doctors put me on Tegratol. Now it's original use is for seizures, but one of the side effects is it does sometimes stop the electrical, lightning bolt sensations. I was on it for a while, but started having seizures; my body couldn't metabolize the Tegratol correctly so it caused me to have seizures. It is a rare occurrence, but I seem to get them all...lol. But while I was taking it, it did help a lot with the 'electrical' impulses and shocks going through me. Might ask your doctor about it... Namaste, Bernie in Texas On 12/8/2010 2:59 AM, Dalton Garis wrote: May I break in with a question of my own? I am having a great deal of trouble with cramping and what I just learned is called hypertonis, which is too much muscle tone and willingness to contract, and the feedback loop to the brain that would tell the muscle not to contract being damaged by the TM in my brainstem, where the lesion was actually found. I can't continue to function with this hypertonis, which feels as if I am being electrocuted from the base of my spine, all the way down my legs and arms, so that it hurts a lot to move at all, or even talk. Only by being completely still and relaxed does this pain subside. Have any of you had experience with this? And if so, can you recommend a medication which might be useful? Thanks, and hope to hear back soon, Dalton On Dec 8, 2010, at 12:03 PM, Barbara Alma wrote: Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so figure if I can put it off for awhile, I will. As much as I walk, I'll probably never wear it out. I was actually on schedule for a knee replacement last year when I asked to see a physical therapist in order to best improve the strength in my body so I could get through the rehab in the best way possible. The therapist told me that the knee is no walk in the park. It is extremely painful, after the surgery, but especially the rehab. I don't understand what you mean about rehab differently. From what I understand, and I really didn't go into it all the way, you have exercises and walking. He told me that a very painful part is straightening the knee, as it will want to be bent to be in less pain, but not good since you develop scar tissue very quickly and if not careful, you will not be able to straighten it fully. I had a couple of visits and from the exercises that I was doing for my legs I no longer had the pain that I was having. At the time I also was having a lot of pain with my shoulder over for a year and a half at that point, so knew it would be extra painful on the shoulder. I use canadian crutches or a rolling walker to get around, and the orthopedic surgeon says that I walk on my shoulders, lol. I had rotator cuff surgery and a bone spur removed two months ago and am no longer in pain there, so when I really need the knee, I'll hopefully be in better shape. Good luck Rob, just thought I'd share my small bit of knowledge. Hugs, Barbara A in Auburn CA -Original Message- From: Robert Pall rp...@neillsupply.com To: tmic-list tmic-list@eskimo.com Sent: Tue, Dec 7, 2010 8:43 am Subject: [TMIC] question Have any of you gotten replacement hips or knees..I think I may need a new knee and I was wondering.. if you have no feeling (other than pain) how do you rehabsurely you cannot do it the normal rehab way? Thanks Rob in New Jersey No virus found in this message. Checked by AVG - www.avg.com http://www.avg.com Version: 10.0.1170 / Virus Database: 426/3303 - Release Date: 12/07/10
[TMIC] Knee Replacement
My husband had both knees replaced 6 weeks ago. He spent 3 weeks in the hospital with the last 2 weeks on an Acute Rehab Unit that was wonderful. The first week he had a constant motion machine on his knees to keep the muscles limber to bend his knees. About every 2 days they increased the angle of the machine to bend the knees a little more. His pain was controlled with oral pain meds ice packs. Physical Therapy was started the second day post-op he was up in a chair. In the rehab unit the 2nd 3rd weeks, he had 3 hours of PT in the AM another 3 hours in the afternoon. After the 2nd week, he was walking with a walker, showering with assistance, taking meals in a common dining room. This rehab was very intense, but really helped. At home now he recieves PT three times a week. After 1 week home he is now walking with a cane even by himself. The first 2 weeks were the hardest, but once he was home improvement has really been fast and home health will probably only come another 2-4 weeks. Hope this answers some of your questions. My husband has COPD has done well. He was in such pain before the surgery (bone on bone in both knees) he is very glad he had the surgery. Any questions I would try to answer. Linda E. East Texas
Re: [TMIC] question
Not an answer but a suggestion. If your lesion is in your brainstem perhaps some of the the medications and approaches used for MS might be helpful. Akua May I break in with a question of my own? I am having a great deal of trouble with cramping and what I just learned is called hypertonis, which is too much muscle tone and willingness to contract, and the feedback loop to the brain that would tell the muscle not to contract being damaged by the TM in my brainstem, where the lesion was actually found. I can't continue to function with this hypertonis, which feels as if I am being electrocuted from the base of my spine, all the way down my legs and arms, so that it hurts a lot to move at all, or even talk. Only by being completely still and relaxed does this pain subside. Have any of you had experience with this? And if so, can you recommend a medication which might be useful? Thanks, and hope to hear back soon, Dalton --
Re: [TMIC] question - knee replacement
Hi Patti, I'm not sure if he is right or wrong, but my physical therapist told me that I probably have hypersensitivity. I am not sure if that had anything to do with the pain issue, but I don't think so. I think it's due to the fact that I don't walk well and that I wouldn't be able to do the rehab as well or in the same manner as somebody who is walking much better. I know that they keep you comfortable with pain meds, but I went through plenty with my shoulder, needing to put pressure on it just to be able to ambulate about a little. I still needed to get back and forth to the bathroom, on and off a toilet, etc and that's just the minimum. Wow, it seems like a double replacement is rather common. Although I cannot imagine doing 2 at once, it may be nice if you need to do them. to get the pain and rehab over with all at once. And.then on with your life! Hugs, Barbara A in Auburn CA -Original Message- From: Patricia Cooley patticoole...@gmail.com To: 'Barbara Alma' balmat...@aol.com; RPall rp...@neillsupply.com; tmic-list tmic-list@eskimo.com Sent: Wed, Dec 8, 2010 7:04 am Subject: RE: [TMIC] question Barbara my husband had double knee replacement in 2006. Whatever pain he had must not have been too bad as he didn’t complain. I think the one thing that made it easier for him is doing your pre-surgery exercised to strengthen leg muscles. A month before surgery he a given a 3-ring binder with all the excises listed. He did them faithfully all day so his body was ready for the demand surgery would put on his legs. In fact, he only went to P.T. for about 3-4 weeks, as they said they couldn’t do any more for him and Medicare wouldn’t pay for it any more. He was driving again in less than 4 weeks. Of course, he didn’t have any other health problems, which might make a big difference. Good luck with whatever you decide to do. Patti - Wisconsin From: Barbara Alma [mailto:balmat...@aol.com] Sent: Wednesday, December 08, 2010 2:04 AM To: rp...@neillsupply.com; tmic-list@eskimo.com Subject: Re: [TMIC] question Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so figure if I can put it off for awhile, I will. As much as I walk, I'll probably never wear it out. I was actually on schedule for a knee replacement last year when I asked to see a physical therapist in order to best improve the strength in my body so I could get through the rehab in the best way possible. The therapist told me that the knee is no walk in the park. It is extremely painful, after the surgery, but especially the rehab. I don't understand what you mean about rehab differently. From what I understand, and I really didn't go into it all the way, you have exercises and walking. He told me that a very painful part is straightening the knee, as it will want to be bent to be in less pain, but not good since you develop scar tissue very quickly and if not careful, you will not be able to straighten it fully. I had a couple of visits and from the exercises that I was doing for my legs I no longer had the pain that I was having. At the time I also was having a lot of pain with my shoulder over for a year and a half at that point, so knew it would be extra painful on the shoulder. I use canadian crutches or a rolling walker to get around, and the orthopedic surgeon says that I walk on my shoulders, lol. I had rotator cuff surgery and a bone spur removed two months ago and am no longer in pain there, so when I really need the knee, I'll hopefully be in better shape. Good luck Rob, just thought I'd share my small bit of knowledge. Hugs, Barbara A in Auburn CA -Original Message- From: Robert Pall rp...@neillsupply.com To: tmic-list tmic-list@eskimo.com Sent: Tue, Dec 7, 2010 8:43 am Subject: [TMIC] question Have any of you gotten replacement hips or knees…..I think I may need a new knee and I was wondering….. if you have no feeling (other than pain) how do you rehab…surely you cannot do it the normal rehab way? Thanks Rob in New Jersey
Re: [TMIC] fatigue
Cheryl in Easthampton,MA Big warm hugs, Cheryl! It's winter and cold. Tonight they said it would go down to 12 degrees. The days are short and getting shorter. Darkness comes early. You did goood to be up and out so early and get all of that done. Be kind to yourself. Rent a good movie ( I think Inception will be my on-demand holiday treat) Akua --
Re: [TMIC] question
Re: [TMIC] questionI've read elsewhere that once one's brain is affected by myelitis or sclerosis, that makes it an MS issue. And there are several medications to ameliorate that one. BobbyJim From: Akua To: tmic-list@eskimo.com Sent: Wednesday, December 08, 2010 12:47Subject: Re: [TMIC] question Not an answer but a suggestion. If your lesion is in your brainstem perhaps some of the the medications and approaches used for MS might be helpful. Akua May I break in with a question of my own? I am having a great deal of trouble with cramping and what I just learned is called hypertonis, which is too much muscle tone and willingness to contract, and the feedback loop to the brain that would tell the muscle not to contract being damaged by the TM in my brainstem, where the lesion was actually found. I can't continue to function with this hypertonis, which feels as if I am being electrocuted from the base of my spine, all the way down my legs and arms, so that it hurts a lot to move at all, or even talk. Only by being completely still and relaxed does this pain subside. Have any of you had experience with this? And if so, can you recommend a medication which might be useful? Thanks, and hope to hear back soon, Dalton
Re: [TMIC] question
Thanks, Bobby Jim; In fact, they thought it was MS to begin with, and I was also convinced of this until my attack on 23 April, when it hit both sides, and I became as I am now. But we share the same meds to a large extent, Baclofen, as an example. My neuro won¹t give me Baclofen because he says I would become too fatigued. But I think it¹s time because with this pain it¹s game-over, anyway. Dalton From: bobby jim elbobber...@earthlink.net Date: Wed, 8 Dec 2010 18:27:55 -0600 To: tmic-list@eskimo.com, Akua a...@artfarm.com Subject: Re: [TMIC] question Resent-From: tmic-list@eskimo.com Resent-Date: Wed, 8 Dec 2010 16:28:30 -0800 I've read elsewhere that once one's brain is affected by myelitis or sclerosis, that makes it an MS issue. And there are several medications to ameliorate that one. BobbyJim From: Akua mailto:a...@artfarm.com To: tmic-list@eskimo.com Sent: Wednesday, December 08, 2010 12:47 Subject: Re: [TMIC] question Not an answer but a suggestion. If your lesion is in your brainstem perhaps some of the the medications and approaches used for MS might be helpful. Akua May I break in with a question of my own? I am having a great deal of trouble with cramping and what I just learned is called hypertonis, which is too much muscle tone and willingness to contract, and the feedback loop to the brain that would tell the muscle not to contract being damaged by the TM in my brainstem, where the lesion was actually found. I can't continue to function with this hypertonis, which feels as if I am being electrocuted from the base of my spine, all the way down my legs and arms, so that it hurts a lot to move at all, or even talk. Only by being completely still and relaxed does this pain subside. Have any of you had experience with this? And if so, can you recommend a medication which might be useful? Thanks, and hope to hear back soon, Dalton
