Hi! I also was so glad to be able to feel a part of this unique group of wonderful people. I was feeling so isolated with having a disease so rare. While we are sorry for the reason you found us, we will give you support in every way. Many of us have the body temperature problem. I get very hot and sweaty from the shoulders up - the rest of me can feel cool to the touch. I wear a clonidine patch on my arm to help regulate my body heat, but I don't think it does a lot for me, but I wear it anyway. I am from Missouri, so we are neighbors. Just remember, as many of us have said before to other new members, there is nothing that has not been discussed among us. TM affects us in so many ways - not just our walking. At least, if you want to discuss a problem, whether physical or emotional, there will always be someone that knows exactly what you are talking about (probably most of us). No embarrassments here. We also discuss medications we are taking, etc. I wish you were seeing your neurologist sooner, but if your doctor is treating the symptoms, that is good. We are your new friends and welcome you. Janice, Missouri
From: Rev. Craig Crossman Sent: Sunday, July 25, 2010 12:25 PM To: tmic-list@eskimo.com Subject: [TMIC] TM Info request Hello, I was very glad to find this e-list. I am "new" to TM having been diagnosed one year ago. We moved from PA to Kansas in April. This has been a hot summer with 20+ days straight of temps in upper 90's to low 100's, and I find I am having a greater number of symptoms than normal. Does anyone know if TM patients are adversely affected by heat? My doctor is not very familiar with TM and I won't see a neurosurgeon until September. Thanks, and God bless. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org