RE: [CML] (CML) re: Gleevac vs. Transplant

Fri, 10 Sep 2004 15:22:27 -0700

I appreciate everyone's thoughts and opinions on the subject of gleevec vs. transplant. I was diagnosed with CML about three weeks ago. Luckily, I caught it in the very early stages, so I have time to figure out my treatment plan. Yesterday I met with a bmt specialist at Fred Hutch, and next week I have an appointment with Dr. Druker. I am very torn on the subject of gleevec vs. transplant because I am young (26), otherwise healthy, and in the early stages of the disease. I want to rid my body of this completely, but at the same time I don't want to destroy my chances of having children down the road due to a transplant, along with the other complications related to the transplant.

I am new to this group, and would appreciate hearing how others have dealt with this same conflict. I have been feeling really positive since my diagnosis because I have received such a huge amount of support from friends and family. But I think the reality of the decision I am faced with about treatment finally caught up with me yesterday and it is really tough.

Thank you,

Meghann 



 

>From: Michael L <[EMAIL PROTECTED]>
>Reply-To: [EMAIL PROTECTED]
>To: [EMAIL PROTECTED]
>Subject: [CML] (CML) re: Gleevac vs. Transplant
>Date: Fri, 10 Sep 2004 14:42:45 -0700 (PDT)
>
>Tonya
>
>I have to strongly disagree with your decision.
>Back in 2000 I was diagnosed with CML.  At that time they were still doing trials on STI which is now Gleevac.  I too had a perfect match 6 out of 6 plus the other indicators.  I wanted a cure.  The only cure is a transplant.  I hesitate to talk about Gleevac in a negative way because so many people on this group use it including you.  Gleevac is great for older people and others who are waiting to find a donor. It is a great breakthrough.
>
>If you have a perfect match....I don't see why you would choose Gleevac.
>It has been over four years and I am cured.  I have no hesitation saying that.  My counts are now HEALTHIER than the average person.  I take NO medication.
>
>The option of Gleevac is easier than a transplant.  The only cure is a transplant.  So m many people would kill for the chance to have a perfect match.  Don't throw that away.  I was blessed to find an unrelated perfect match donor.  Don't take the easy way out.
>I won't lie.  A bone marrow transplant is very taxing on the body and the mind.  But unlike people on Gleevac I have the piece of mind that my cancer is gone.
>
>The long term side effects of Gleevac are unknown.  Very few people on Gleevac lose the Philadelphia chromosone.
>
>In closing, I hope that I have not offended anyone, but Tonya struck on a subject close to my heart.  Please get the transplant.  It has given me back my life.  A normal life without doubts or fears about CML.
>
>Michael
>Diagnosed 10-2000
>Transplant 5-2001
>Cured 10-2001
>
>
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