[CML] Confused

Mon, 20 Jun 2005 20:50:42 -0700

Hi everybody,
 
It hasn't been a good day today for me. I am very confused.  I went to my  oncologist who is always talking about BMT to be the best option for me. I am in a chronic stage of CML.  I am taking Gleevec 600 mg and I do not know if I am in remission or not... I was referred to the oncologist at Johns Hopkins University Hospital in Baltimore (do you have any experience with any particular doctor over there?) to talk abt BMT and the doctor said that I should stay on Gleevec as long as it works and even if it doesn't there are some new promising drugs which should substitute Gleevec in the future. He says that BMT is still going to be an option for me in the future but we hope I will never need it. My primary oncologist (who is not a specialist for CML) says that she is not so optimistic about Gleevec since many people have failed it, and I am young (26 yrs - ugh still can not believe I am so sick, so young) and BMT is the best to do withing the 1 year since I was diagnosed. Anyway, can somebody write me what do you thinkg about it?   
I am sorry I am curious, but I would like to know who is Rob. Just to know who is providing such a good info for us.
It is midnight and nobody to talk to.: ) It is early in the morning and my friends and parents in Slovakia are sleeping. I would be able to write and write, to substitute my lack of communication.
Thanks for all the emails I received.  All of them are very helpful.
Have a nice day.
Livia
dx 02/05
Gleevec 600 mg
 

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