Hi Livia, I am 31 and was diagnosed in November 2004, so I can understand what you're going through. I too am on Gleevec, and seem to be responding well, but having a BMT is something I've thought about. My doctor wants me to stay on Gleevec for about a year before we make a final decision on my treatment. I have 2 perfect match donors if I want to go that way, but I feel good so I'm a little reluctant. It's kind of like being stuck between a rock and a hard place. Do you get the BMT with the chance of being cured and the risk of losing your life, or do you stick with drug treatments and eventually risk the same? I am very optimistic about current and future treatments. At the same time, I wonder if I can manage this disease for the next 40 years with drugs alone. Ultimately, it's a personal decision, but it seems that most CML doctors are recommending the Gleevec route because it's working for most patients and the treatments are only going to get better from here. My personal opinion would be to weigh the options and discuss them with doctors that specialize in CML. Plus, you may want to wait and see how you're responding to Gleevec. I hope this helped. Take care and God bless...
Stefan --- In [email protected], livia klescova <[EMAIL PROTECTED]> wrote: > Hi everybody, > > It hasn't been a good day today for me. I am very confused. I went to my oncologist who is always talking about BMT to be the best option for me. I am in a chronic stage of CML. I am taking Gleevec 600 mg and I do not know if I am in remission or not... I was referred to the oncologist at Johns Hopkins University Hospital in Baltimore (do you have any experience with any particular doctor over there?) to talk abt BMT and the doctor said that I should stay on Gleevec as long as it works and even if it doesn't there are some new promising drugs which should substitute Gleevec in the future. He says that BMT is still going to be an option for me in the future but we hope I will never need it. My primary oncologist (who is not a specialist for CML) says that she is not so optimistic about Gleevec since many people have failed it, and I am young (26 yrs - ugh still can not believe I am so sick, so young) and BMT is the best to do withing the 1 year since I was diagnosed. Anyway, can > somebody write me what do you thinkg about it? > I am sorry I am curious, but I would like to know who is Rob. Just to know who is providing such a good info for us. > It is midnight and nobody to talk to.: ) It is early in the morning and my friends and parents in Slovakia are sleeping. I would be able to write and write, to substitute my lack of communication. > Thanks for all the emails I received. All of them are very helpful. > Have a nice day. > Livia > dx 02/05 > Gleevec 600 mg > > > __________________________________________________ > Do You Yahoo!? > Tired of spam? Yahoo! Mail has the best spam protection around > http://mail.yahoo.com New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
