Since in Slovakia the only option for me would be BMT and most of the doctors told my parents to do it, my father insists on me. He just met some people who had CML and got cured by having a BMT. That's why he thinks it woul be the best thing. A biggest problem for me is, that my parents are not here. They can not talk to the doctors and find out more information which are accesible over here. I can't imagine to have a BMT and not have my parents here, my grandma, sister, and others. My parents are also scared that if I wait a long time after I was diagnosed BMT may not be succesful. Well it is a difficult decision and I am not able to make it, I am sure it would be easier for me.
Keep in touch, thank you, Liviasshine2412 <[EMAIL PROTECTED]> wrote:
Hi Livia,
I am 31 and was diagnosed in November 2004, so I can understand what
you're going through. I too am on Gleevec, and seem to be responding
well, but having a BMT is something I've thought about. My doctor
wants me to stay on Gleevec for about a year before we make a final
decision on my treatment. I have 2 perfect match donors if I want to
go that way, but I feel good so I'm a little reluctant. It's kind of
like being stuck between a rock and a hard place. Do you get the BMT
with the chance of being cured and the risk of losing your life, or
do you stick with drug treatments and eventually risk the same? I am
very optimistic about current and future treatments. At the same
time, I wonder if I can manage this disease for the next 40 years
with drugs alone. Ultimately, it's a personal decision, but it seems
that most CML doctors are recommending the Gleevec route because it's
working for most patients and the treatments are only going to get
better from here. My personal opinion would be to weigh the options
and discuss them with doctors that specialize in CML. Plus, you may
want to wait and see how you're responding to Gleevec. I hope this
helped. Take care and God bless...
Stefan
--- In [email protected], livia klescova <[EMAIL PROTECTED]> wrote:
> Hi everybody,
>
> It hasn't been a good day today for me. I am very confused. I went
to my oncologist who is always talking about BMT to be the best
option for me. I am in a chronic stage of CML. I am taking Gleevec
600 mg and I do not know if I am in remission or not... I was
referred to the oncologist at Johns Hopkins University Hospital in
Baltimore (do you have any experience with any particular doctor over
there?) to talk abt BMT and the doctor said that I should stay on
Gleevec as long as it works and even if it doesn't there are some new
promising drugs which should substitute Gleevec in the future. He
says that BMT is still going to be an option for me in the future but
we hope I will never need it. My primary oncologist (who is not a
specialist for CML) says that she is not so optimistic about Gleevec
since many people have failed it, and I am young (26 yrs - ugh still
can not believe I am so sick, so young) and BMT is the best to do
withing the 1 year since I was diagnosed. Anyway, can
> somebody write me what do you thinkg about it?
> I am sorry I am curious, but I would like to know who is Rob. Just
to know who is providing such a good info for us.
> It is midnight and nobody to talk to.: ) It is early in the morning
and my friends and parents in Slovakia are sleeping. I would be able
to write and write, to substitute my lack of communication.
> Thanks for all the emails I received. All of them are very
helpful.
> Have a nice day.
> Livia
> dx 02/05
> Gleevec 600 mg
>
>
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