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Is Gleevec not available in Slovakia?
Rob
----- Original Message -----
Sent: Tuesday, June 21, 2005 1:57
PM
Subject: Re: [CML] Re: Confused
Hi Stefan,
your name sounds European.
Since in Slovakia the only option for me would be BMT and most of the
doctors told my parents to do it, my father insists on me. He just met some
people who had CML and got cured by having a BMT. That's why he thinks it woul
be the best thing. A biggest problem for me is, that my parents are not here.
They can not talk to the doctors and find out more information which are
accesible over here. I can't imagine to have a BMT and not have my parents
here, my grandma, sister, and others. My parents are also scared that if I
wait a long time after I was diagnosed BMT may not be succesful. Well it is a
difficult decision and I am not able to make it, I am sure it would be easier
for me. Keep in touch, thank you, Livia sshine2412
<[EMAIL PROTECTED]> wrote: Hi
Livia,
I am 31 and was diagnosed in November 2004, so I can understand
what
you're going through. I too am on Gleevec, and seem to be
responding
well, but having a BMT is something I've thought about.
My doctor
wants me to stay on Gleevec for about a year before we make a
final
decision on my treatment. I have 2 perfect match donors if I
want to
go that way, but I feel good so I'm a little reluctant.
It's kind of
like being stuck between a rock and a hard place. Do
you get the BMT
with the chance of being cured and the risk of losing
your life, or
do you stick with drug treatments and eventually risk the
same? I am
very optimistic about current and future
treatments. At the same
time, I wonder if I can manage this
disease for the next 40 years
with drugs alone. Ultimately, it' s
a personal decision, but it seems
that most CML doctors are recommending
the Gleevec route because it's
working for most patients and the
treatments are only going to get
better from here. My personal
opinion would be to weigh the options
and discuss them with doctors that
specialize in CML. Plus, you may
want to wait and see how you're
responding to Gleevec. I hope this
helped. Take care and God
bless...
Stefan
--- In [email protected], livia
klescova <[EMAIL PROTECTED]> wrote:
> Hi everybody,
>
> It hasn't been a good day today for me. I am very confused. I
went
to my oncologist who is always talking about BMT to be the
best
option for me. I am in a chronic stage of CML. I am taking
Gleevec
600 mg and I do not know if I am in remission or not... I was
referred to the oncologist at Johns Hopkins University Hospital in
Baltimore (do you have any experience with any particular doctor over
there?) to talk abt BMT and the doctor said that I should stay on
Gleevec as long as it works and even if it doesn't there are some new
promising drugs which should substitute Gleevec in the future. He
says that BMT is still going to be an option for me in the future but
we hope I will never need it. My primary oncologist (who is not a
specialist for CML) says that she is not so optimistic about Gleevec
since many people have failed it, and I am young (26 yrs - ugh still
can not believe I am so sick, so young) and BMT is the best to do
withing the 1 year since I was diagnosed. Anyway, can
>
somebody write me what do you thinkg about it?
> I am
sorry I am curious, but I would like to know who is Rob. Just
to know
who is providing such a good info for us.
> It is midnight and nobody
to talk to.: ) It is early in the morning
and my friends and parents in
Slovakia are sleeping. I would be able
to write and write, to substitute
my lack of communication.
> Thanks for all the emails I
received. All of them are very
helpful.
> Have a nice day.
> Livia
> dx 02/05
> Gleevec 600 mg
>
>
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