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Has he tried increasing the dose, some have been able to get to full
remission
with a higher dose.
The new BMS and AMN drugs are not confirmed cures but BMT's are not
either
for patients who relapse, have serious complications, or do not
survive.
It might be good to get an opinion from another doctor or possibly consult
with
one of the CML experts at MDACC etc. to see if they also suggest the
BMT
route.
Rob
----- Original Message -----
Sent: Monday, August 08, 2005 8:23
PM
Subject: [CML] Good News??
Sorry it's been a while since my last post. I figured
i would fill
everybody in. I went to see a specialist today for the
first time,
his name is Dr. David Hurd w/ Wake Forest Baptist Medical
center in
Winston-Salem N.C. I learned a lot today, but most
importanatly i
guess is the fact that he wants me to proceed with the
BMT. Reasons
being that my last fish test revealled that i still had
4% philly's,
and after being on gleevec for over a year he wasnt
comfortble with
that result. He said ultimately it was my
decision ofcourse, which
i a m ok with. Strangely enough i am not
scared at all...should i
be? Dr Hurd says that the cards are in my
favor..im 26, healthy and
have a great attitude torwards this. I
dont know what to do though,
he mentioned "super gleevec", but i dont want
to put much faith in
something else that is not a confired cure. I
guess inadvertantly i
have already made up my mind to go through with it,
but i also have
to consider my wife and my 3 month old. So with that i
dunno im at a
turning point fo sure and i welcome any stories on BMT's
that you
have to offer, i know that it is a feirce procedure and not
always a
happy eneding, but i have to beleive it will be for me.
Give me
guidance please.
thank you
roger
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