Hi Alicia, My dx came April of 2004, I suffer from bone pain, fatigue, muscle cramps, and nausea, I eat tums like candy..lol Anyway to answer your question I was lucky and the job I had did have excellent LTD benefits, in fact I can draw until 2030 according to a letter I got from Aetna. My side effects have been pretty constant since I started on Gleevec, so I have been off work since, in fact Aetna has hired a company to help me get Social Security. That is so they do not have to pay the full amount if I am out for a long long time. I had a desk job as a fraud investigator for a credit card processing company and did try to go back in July but lasted less than a week. The thing to remember is no company is going to give you special paid time off, or sick days, so you have to becareful or else they could terminate you and then you are screwed. I would advise going out on disabilty if you can until you are sure you can go back to work and stay working.
>From: "cintamoon16" <[EMAIL PROTECTED]> >Reply-To: [email protected] >To: [email protected] >Subject: [CML] Re: ? for you guys >Date: Thu, 10 Nov 2005 02:13:55 -0000 > >Hi Alicia, >I was diagnosed in April this year.I am working 4 days a week now. >My dx came about 3 weeks away from finals at school. I was a full >time student at a university. I am 49 years old. I finished the >semester and took 2 months off. I thought alot about my future with >CML. I had been a stay at home mom, then divorced, and went to >college to become a teacher. I do not have the social security >credits needed in the past 5 years to qualify for SS disability >should I need it. I was exhausted when I first started Gleevec - >after 3 months or so the fatigue got better.I decided to change my >plans career wise and decided to work now while I am feeling >reasonably well in case I need to go on disability later.I decided >to take a desk job rather than a more physically demanding position, >and that has been a good choice for me. I do sleep alot 9-10 hours . >Best Wishes, >Cynthia --- In [email protected], "[EMAIL PROTECTED]" ><[EMAIL PROTECTED]> wrote: > > > > I was wondering how many of you are on some sort of disability for >the CML. I was diagnosed at the beginning of October. I took a few >weeks off of work and started back at 2 days per week, then upped to >three days....6 hours per day. I am totally wiped after my work >days and have lots of bone pain and exhaustion. My doctor said he'd >sign my disability papers from work if I wanted him to (we have long >term disability). I was just wondering how many of you are out of >work because of this desease and the pills side effects. > > Thank you, > > Alicia > > > > > > > > > > View our family's newest photos at webshots > > > > > > The time goes by so fast.. > > > > > > > ------------------------ Yahoo! Groups Sponsor --------------------~--> AIDS in India: A "lurking bomb." Click and help stop AIDS now. http://us.click.yahoo.com/DGdbQD/lzNLAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
