Hello Megan
My name is Andrea and I am 24 years old. I was DX 2
years ago yesterday. In the beginning it is a little
more scary not knowing what to expect. I was DX with
white blood counts of 343,000 they said that I was
heading for a stroke that would leave me Brain died.
I was put on Gleevec 600mg and Hydroxea 400mg. 4
weeks later I was off Hydroxea and Gleevec was lowered
to 400mg. Gleevec didn't bother me to much I was
really tired in the Begining and I had alot of muscle
pain for about the first year. The last year other
then still having to take the medication my side
affects have been very mild. Thank God now I can
finally go on with my wedding plans. The worse part is
knowing that I can not have children due to the
medication. I'm not sure what the doctors are telling
your mother in law, But I believe that the medication
is a miracle. Hope in the near future they can find a
cure with it or with something similar to it, so that
we can all be completely cured on CML. I hope I
helped and welcome to the group.
--- penfoldmckenzie2 <[EMAIL PROTECTED]>
wrote:
> My name is Megan, I am 23 and live in Australia. My
> mother-in-law (age 55) has just been
> diagnosed with CML.
>
> She also has CIDP (an autoimmune disease) which
> required regular blood tests to monitor
> complicatons from it's treatment (such as liver and
> kidney degradation and infections from
> immunosuppression). As a result we were able to
> watch her white blood cell count climb
> over the last 2 months to 49, at an exponential
> rate, her platelets are also around 800
> count.
>
> Tests have shown that the Philadelphia chromosome is
> present in 100% of cells.
>
> As soon as the forms have been processed she will
> commence treatment with Glivec
> (gleevec).
>
> I am hoping that this group will provide me with a
> better idea of what to expect as this
> disease takes it's course.
>
> Her hematologist is reluctant to talk about what can
> go wrong, untill it happens (doesn't
> want to scare us?) and has said that this pill will
> make her go into remission and hopefully
> she will never enter the accellerated phase of this
> disease.
>
>
>
>
>
>
>
>
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