Rob
On 12/15/05, Karly <[EMAIL PROTECTED]> wrote:
Penny,
I am sorry to hear about your son. I don't know of any CML experts
in Kentucky, but I would definitely look into some of the cancer
centers such as MD Anderson in Houston, St. Louis, etc...
If you haven't already, you might look in depth into your son's
insurance to see if some of the major cancer centers are covered in-
network. When my husband had to have a transplant, we chose
Seattle, and although it is very far away from where we live, it was
in-network for us. I learned that it is common for insurance
companies to contract with several of the major cancer centers to
provide in-network services for major events such as cancer.
I would definitely consider some of the clinical trials that are out
there and try to see a CML expert for a second opinion. I also
think, though, that your son might consider doing a preliminary
search on the donor list...there is no charge for the preliminary
search and you will at least know if there are any potential matches
should it come to transplant. Also, you would be one step closer to
an in depth search if your son decided to or needed to move forward
with transplant.
I wish you and your son much success in finding answers and
treatment.
All the best,
Karly
--- In [email protected], "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:
>
> Hi,
> I am not one to write and post often but I do read the mail sent
out on a regular basis.
> I received some wonderful support some time ago when my son lost
his remission and his gleevec was increased to 600 mg. per day. He
had been doing well on that dosage but last night he was told that
he is not doing well. His white count is up to 30,000.
> He is in med school in eastern Kentucky and when he contacted his
onc. she immediately told him to get on the bone marrow list so they
can start hunting for a donor for a transplant. He has no natural
siblings (only adopted).
> I am a little surprised by her reaction. I would have thought she
would have increased his gleevec or suggest he try to get in a trial
instead of jumping right into transplant. He has 1 1/2 years of med
school left and it would be great if he could get through that time
before doing something drastic.
> What do the rest of you think about this? Does anyone know of a
good CML specialist in the Lexington area? He is about 2 hours from
there but it is the closest big city which might have a CML doctor.
> Any help of response will be greatly appreciated.
> Thanks, Penny (a sad and worried mom)
>
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