Hi Group,
Thanks so much for the postings. I will definitely review the references you provided.
My doctor has still not stated "you have T-cell lymphoma", and I do not believe that they will until it is confirmed by biopsy, however I have seen the cytopathology reports and the immunophenotyping reports of the aspiration, which both point towards T cell lymphoma. I'm still holding on to the thought that it may be wrong, and perhaps this is just some "reactive process," as they are calling it, but it seems unlikely.
If it is a coincidence, it is just so weird!! I keep thinking to myself....what in my life was I exposed to that I would develop TWO blood cancers? Nothing pops out. I've never been treated for any cancer and was 100% healthy until this past year (who knows for sure when the mutation truly developed, but I am in chronic phase
and I feel it happened sometime in the past year). This is why I am trying to find some connection.
As far as my CML, I have responded well hematologically and am due for my BMB in May (6 month mark). I have not had a PCR to this point, not sure why they didn't do a 3 month PCR....my doc said there was no reason to believe that I wasn't responding because of my excellent hematologic response... the year mark is the most important regardless of how quickly you get there, etc.
As far as the presentation of the lymph node...I was off Gleevec secondary to neutropenia and was also anemic. It was in March...I guess it is allergy season in Philadelphia, but I had absolutely no constitutional symptoms other than the enlarged, swollen node (no fevers, runny nose, no flu-like symptoms, no sore throat). It got quite swollen and was at times painful (I took ibuprofen for it). I was given
antibiotics (Augmentin) for 2 weeks, and at the same time restarted the Gleevec. I must say that it definitely got better after a week (was it the antibiotics or the Gleevec?), at which time they aspirated it. Now here we are...
I realize that to develop a secondary cancer so soon after starting medicine or so soon after diagnosis seems unlikely. I just keep thinking that the Philadelphia chromosome could affect another cell line and perhaps this is why I have this issue? I guess I will know more in a few weeks, but it is hard not to think about it ALL THE TIME until then!!
Thanks so much for your support and I will definitely keep you updated.
Melody
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