[CMLHope] Re: Reactions...

Sun, 27 Aug 2006 11:52:31 -0700

I have been on 800mg since December of 2004.  I had terrible side effects for about 6 months.(weight gain, rash, gout, diarrhea, major water retention in my legs)...my weight gain stopped after about a year and I have returned to a somewhat normal size for me.  I have been skinnier than I am now, but at this point I am just happy to not have all that water retention.

I tolerate 800mg very well.  My permanent side effects are a rash and low iron counts, so I take a mulit vitamin, claritan, and Slow FE  along with the Gleevec.  The water retention is not so bad anymore, my eyes are puffy in the morning but seem to look normal by afternoon-

The 800mg has put me in remission and kept me there so I am quite pleased.  I hope this answers your questions....I take 400 at lunch and the other 400 at dinner.  My lunch pills tend to upset me (indigestion) more than the dinner, but the lunch pills are capsules from MDACC and the dinner pills are tablets from my insurance co.

I am an active 29 year old despite the side effects.  My husband an I travel, ride our bikes, etc.  I must say that after the initial "Gleevec shock" to my system, I have and continue to lead a "normal life."

Allyson

From:  "Chrissy" <[EMAIL PROTECTED]>
Reply-To:  [email protected]
To:  "CMLHope" <[email protected]>
Subject:  [CMLHope] Reactions...
Date:  Sun, 27 Aug 2006 10:33:00 -0700
>
>Hello all,
>
>Just out of curiousity, what were some of your experiences when you
>started getting results from Gleevec?  Did you start feeling better as
>the disease left your system?  Or was the Gleevec harder to tolerate
>the longer you were on it, whether your results were improving or not?
>
>
>Also, how did you find everything when you began Gleevec, compared to
>where you are now?  For example, I started on 400mg in April/05, and
>when I was increased to 600mg in June/05, it knocked me on my butt.  I
>actually started feeling better when I started taking 800mg in Jan/06,
>because it seemed that taking my pills twice a day instead of once was
>easier on my system.
>
>Anyway, just curious about some of your stories.  I know we can't
>necessarily guage one person's progress by another's, but I would be
>interested to know if there are some similarities any of you out there
>have had while taking Gleevec.  I thought it might be interesting to
>talk amongst ourselves about this, because as doctors have the
>knowledge and statistics on some of the "black and white" areas
>surrounding cancer drugs, perhaps we can fill in the grey areas in
>between.
>
>Take care and best wishes!
>Chrissy
>
>
>
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