Terry,

I think the part where you mentioned, "my side effects are now managed
and I have a decent life now," is the best part of all.  It's such a
positive sentiment.  I agree with you 100%.  We are fortunate to have
the QOL we do.  I often think that despite the fact it is scary to have
cancer, if you have to have something, maybe CML is the thing to have.


It's hard to put weight on, isn't it?  I never would have thought I
would ever have a problem eating!  Like I said before, I tended to eat
anything and everything, because I was desperate to put on weight.  I
am 5'3" and have always been around 145-150lbs.  Around 8 months ago, I
was down to 115lbs.  I dropped from my one-time size 12 to around a 2
or a 4!  Now I am about 140lbs, but it took me awhile to put the weight
back on, probably about 5-6 months.  Not only was losing the weight a
worry, I had to buy all new clothes.

Anyway, some of the things that helped me put the weight back on were
not really 'health' foods, but contained a lot of calories.  I ate ice
cream, milkshakes, nutribars, bacon and egg sandwiches (I survived on
those for what seemed like forever!), fruit smoothies, cookies,
etc...in addition to small breakfasts of toast and homemade eggnog, and
typically a 'meat and potatoes' supper.  If you can stand to eat
protein bars or drink protein shakes, they are good for you, as they
often contain some vitamins and minerals.  What is the hardest thing
you find about eating?  For me, just the smell of food made me feel
ill.  Looking back, it's hard to believe how disinterested I was in
food, as my appetite has come back virtually full force.  Hopefully
that will happen for you, too, in time.  I still get the occasional
stomach upset, unfortunately, and like Allyson said, acidic fruits and
foods can be hard on the tummy.  I also find spicy food and greasy food
hard to tolerate.  The things I liked best could be thrown in a blender
and swallowed as a drink.  Something wet and cold is always nice.
You've probably tried a lot of these things, but I just thought I'd
mention them.

Terry, you have a really positive attitude.  I really admire that you
are honest about your CML experience and sum up your ideas about it so
well.  This gives the rest of us info about CML that isn't provided
anywhere else.  Thank you for that!
Chrissy


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