Hey All,

Haven't posted in a while.  I believe you're right.  No correlation
between the two.  I think both come with an immune system mess up, but
that's only my gut feeling.  No scientific research involved.  I
believe my entire family has a rotten immune system or at least have
immune systems with predispositions to certain diseases.  Two of my
brothers, one of my sisters and I have Crohn's disease.  Among the 4 of
us we have had 4 bowel resections (my brother has had two and my sister
has had none).  A bowel resection is the removal of the affected area,
usually located near the place where the large and small intestine
meet.  It's normally a final effort if all meds fail.

I have Rachel who is my CML daughter (now 16 years old).  The real
kicker is my oldest daughter, Aubrey, is currently in the hospital
trying to avoid having a bowel resection due to Crohn's Disease.  We
almost lost her last Tuesday night due to the negligence of her FORMER
doctor.  Obviously, we have a family who doesn't fight off diseases
very well.  Crohn's isn't even supposed to hit the second generation.
It usually skips a generation, but no such luck in our family.

Good luck with everything.  The only advice I can give is keep the
stress as low as possible.  Also, Rachel takes her Gleevec about 1/2
hour before bedtime.  She says that way when the yucky feeling starts
to hit she is asleep and doesn't feel it.  I know that is the opposite
of many others here, but she likes it that way.  The only thing I might
be concerned with is that you don't digest well and sleeping coud make
that worse.

Good luck!

Julie
Mother of Rachel
dx 11/02/99
bmt 3/00
relapse 3/01
Gleevec 8/01
cytogenetic remission 12/01
currently showing residual disease (they think)
#196 on Zavie's list


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