Anjana, I am not so sure why you or anyone would be offended about my posts. But, this is the internet-stranger things have happened.
You do like to teach people Anjana, and that is not an insult, there are a number of people who benefit from it - I am glad you do it too! As a CML patient I asked a well meaning quesiton of a mother and I thoroughly appreciated her reply. In the future I shall ask those questions privately. The point is that we all look at this disease in a different way. You have your way of deciphering the statisics and someone has another way. We will do what works best for us. You make good points on your post and thanks for taking the time to present your perspective, it does provide a great amount of insight. This comment is not meant to be sarcastic - I really mean it. I see you are doing very well with your writing courses! Again, not being sarcastic just making an observation, you do write well. This discussion started because I asked a mother to give us information on what made her decide not to go for a BMT for her son. Not once did I suggest that I was judging her decision. In fact, I was not judging her decision. Some many people have mis judged my remarks. Instead of asking me directly for clarification. What I have merely pointed out was this: We all are happy for Gleevec and Sprycel, and that there is more than one way to approach this situation. That's all! I am as we all are grateful for the progress on the drug front, but also very grateful for the progress on the BMT front. Yes, our enthusiasm does drive research and plays an important role in it too! There are numerous ways to show your enthusiasm. Just google patient advocacy groups - there are quite a number of them. For the record, informaiton needs to be presented fairly and without bias. All approaches need to be given equal opportunity. The only thing I find annoying is that this rarely happens - and no I am not saying that with you particularly Anjana, I am saying that as a general comment. Again, not you specifically Anjana - but it is rather annoying when fellow CMLers go against fellow CMLers over the choice of treatment. There are over 100,000 CML patients in this world only about 10,000 frequent any of these lists. There are patients out there on treatments that are working for them that we have probably not even heard about yet. And good for them. Good for all of us actually! Cheers and have a wonderful day, Cheryl-Anne --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
