Okay here is my story:
In October 2003 I was diagnosed with CML PH+. In November I was put
on Gleevec, 400 mg. In May of 2004 I changed doctors and he put me on
800 mg. My blood work after that was okay still a little high, well,
right outside of the normal margins. I stayed on Gleevec till January
of 2006. I started the trials for Sprycel in Jan. I was put on 100 mg
daily. My BMB's all along still showed the PH+. My recent results were:
FISH:negative
Cytogenetic: 2 of 20
BCR/ABl: Positive
>From what I was told is that it didn't make sense to have 2 of 20 and
for the fish to be negative. She told me that they think that there is
a chromosonal abnormality, and they were going to research it and I
have an appointment on the 25th. This was the first time a fish and a
bcr/abl has been done. The BMB before this one was 11 of 20. So it
looks like there has been improvement, but it freaks me out now that
they are saying there is an abnormality. I am currently seeing a local
oncologist and a specialist at Emory Medical Center in Atlanta. I have
been type tested and have a 9 out of 10 match for unrelated BMT. My
local oncologist said "you won't survive a transplant", so now I am
really worried.
Now here's the question.... Should I try and go to one of the major
cancer centers for a second opinion on my choices? I thought about
trying to get into see Dr. Druker or Mauro. I have Medicare and state
Medicaid. I just think that I need to try all choices before having a
BMT.
I feel like I am running into brick walls. Please any advice.....
Thanks,
Germaine
age 29
dxd 10/2003
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