[CMLHope] Re: Randy(Neupogen)

[Sandy Johnson]

Thanks Anjana,Dr. El- Khoury would not give him Neulasta because he said he did not know enough about it,that is why he went with Neupogen.Dr El-Khoury is a young Dr.,but he seems like he knows his stuff.He is also supposed to be conferring with Randy's CML Dr.Gingrich in Iowa City.I get alittle nervous sometimes so I don't want to jump the gun and make his Dr. upset with me.But I will ask alot of questions Thursday.Depending on his fish test.Dr.Gingrich is to get a fax on this test too.By the way I asked Him if he knew of Dr. Druker,He said yes that he was to choose between Iowa City and where he is now,he choose where he is because he likes to bike or something like that.What a loss for Iowa City.I'll let you know how the fish comes out.Thanks again,Sandy

anjana <[EMAIL PROTECTED]> wrote:

Dear Sandy,

Randy is really having a tough time with his ANC. Neupogen has been
used by many Gleevec patients along with Gleevec to boost up the white
blood cells so I would not worry about that aspect. However, there is
a longer acting Neupogen called Neulasta, I think you take that less
often.

Have a good discussion about the ANC with the doctor after you
receive the FISH results. Ask him the plan, what if his ANC drops
further on 800mg? Maybe need to take this one step at a time.
Sometimes, there is a need to balance the goal of a good cytogenetic
response with low counts management. Is Randy's doctor very
experienced in treating CML patients? You could always drop a mail to
Dr. Brian Druker, he always answers patients. His e-mail is
[EMAIL PROTECTED]

Please post Randy's FISH results as soon as you get them. I am keeping
fingers crossed for a good fat zero as then it will make everything
worthwhile. You are a very good caregiver, dear Sandy, always looking
out for Randy and he will soon be in safe harbors.

Warm Wishes,
Anjana
caregiver to Roy

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