This was a decision that I made with my ONC because of six months
blood transfusions every 3 weeks because of low RBC]'s.  After a
transfusion I would increase to above 9 (low normal being 10) and then
decline into the upper 7's. The vacation may be over in Jan. if my Q-
PCR test remains elevated as it was in Nov.

Richard H.

On Nov 25, 7:57 am, Barb in AZ <[EMAIL PROTECTED]> wrote:
> Richard,
> Could you please tell me how you came to take a gleevec vacation?  I
> am having some severe side effects  to the point that I would consider
> another one. I took one for 10 weeks and then returned to 300 mg
> gleevec.  I changed oncologists and he wants me back on 400 mg.  All
> the symptoms and more are returning.... are you in a trial or is this
> just a decision you made with your oncologist?  I would be interested
> in how long you plan to continue and what they test for in the interim
> to monitor you.
> Thanks in advance for your input.
> Barb S.
> DX 5-5-02
> 400 mg gleevec 6-11-02
> PCRU 3-17-03 and currently
> Gleevec Break 2-15-05 -5-30-05
> 300 mg gleevec 5-30-05- 8-07
> 400 mg  again since 8-07
> Remain undetectable but severe side effects
> Zavie's club #401
>
> On Oct 27, 3:57 pm, Rob <[EMAIL PROTECTED]> wrote:
>
>
>
> > I have put the CMLHope group on moderation so there will be no spam.
>
> > Rob- Hide quoted text -
>
> - Show quoted text -
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